Department of Surgery, The University of Melbourne, Parkville, VIC, Australia.
Department of Rural Health, Melbourne Medical School, The University of Melbourne, Shepparton, VIC, Australia.
Support Care Cancer. 2024 May 27;32(6):384. doi: 10.1007/s00520-024-08570-8.
When a pregnant woman is diagnosed with cancer, she faces complex and unique challenges while navigating both obstetric and oncological care. Despite often being the primary support for women diagnosed with cancer during pregnancy (CDP), little is known about the experiences of their partners. We undertook an in-depth exploration of the experiences of partners of women diagnosed with CDP in Australia.
Semi-structured interviews were conducted with partners of women diagnosed with CDP treated in Australia. Interviews explored partners' inclusion in decision making and communication with health professionals and their own coping experiences. Data were analysed thematically.
Data from interviews with 12 male partners (N = 12) of women diagnosed with CDP were analysed. Two unique themes relevant to partners were identified: 'Partners require support to adjust to changing roles and additional burdens' and 'Treating the couple as a team facilitates agency and coping, but partners' needs are placed second by all'.
Partners of women diagnosed with CDP commonly experience unique stressors and a substantial shift in previously established roles across multiple domains including medical advocacy, household coordination and parenting. Partners' coping is interlinked with how the woman diagnosed with CDP is coping. Inclusion of partners in treatment decisions and communications, and considering partners' wellbeing alongside that of the woman with CDP, is likely to be supportive for partners. In turn, this is likely to enhance the quality of support that women diagnosed with CDP receive from their partners.
当孕妇被诊断出患有癌症时,她在接受产科和肿瘤学护理的同时,面临着复杂而独特的挑战。尽管在怀孕期间被诊断出患有癌症的女性(CDP)的伴侣通常是其主要支持,但对他们的伴侣的经历却知之甚少。我们深入探讨了澳大利亚 CDP 女性伴侣的经历。
对在澳大利亚接受治疗的 CDP 女性伴侣进行了半结构化访谈。访谈探讨了伴侣在决策中的参与度以及与卫生专业人员的沟通情况,以及他们自己的应对经验。对数据进行了主题分析。
对 12 名男性 CDP 女性伴侣(N=12)的访谈数据进行了分析。确定了两个与伴侣相关的独特主题:“伴侣需要支持以适应角色变化和额外负担”和“将夫妻视为一个团队有助于增强自主权和应对能力,但伴侣的需求总是排在第二位”。
CDP 女性伴侣通常会经历独特的压力源,以及在多个领域(包括医学倡导、家庭协调和育儿)中先前确立的角色发生重大转变。伴侣的应对方式与其所诊断出的女性的应对方式密切相关。让伴侣参与治疗决策和沟通,并同时考虑伴侣和 CDP 女性的幸福感,可能会对伴侣有所帮助。反过来,这可能会提高 CDP 女性从伴侣那里获得的支持质量。