• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

Digital solutions for rare diseases in global health.

作者信息

Gerk Ayla, Kundu Shreenik, Meara John G, Stegmann Jorgelina

机构信息

Program in Global Surgery and Social Change, Harvard Medical School, Boston, MA, USA; Harvey E Beardmore Division of Pediatric Surgery, The Montreal Children's Hospital, McGill University Health Centre, Montreal, QC, Canada; Department of Research, RDCom (Rare Diseases Community), Buenos Aires, Argentina.

Harvey E Beardmore Division of Pediatric Surgery, The Montreal Children's Hospital, McGill University Health Centre, Montreal, QC, Canada; Faculty of Medicine and Health Sciences, McGill University, Montreal, QC, Canada.

出版信息

Lancet Glob Health. 2024 Jul;12(7):e1091. doi: 10.1016/S2214-109X(24)00189-X. Epub 2024 May 24.

DOI:10.1016/S2214-109X(24)00189-X
PMID:38801829
Abstract
摘要

相似文献

1
Digital solutions for rare diseases in global health.全球卫生领域中针对罕见病的数字解决方案。
Lancet Glob Health. 2024 Jul;12(7):e1091. doi: 10.1016/S2214-109X(24)00189-X. Epub 2024 May 24.
2
Orphan Lung Diseases.罕见肺部疾病
Semin Respir Crit Care Med. 2016 Jun;37(3):319-20. doi: 10.1055/s-0036-1582012. Epub 2016 May 27.
3
Controversies and Evolving Concepts in Orphan Lung Diseases.罕见肺部疾病的争议与不断演变的概念
Semin Respir Crit Care Med. 2020 Apr;41(2):175-176. doi: 10.1055/s-0040-1708057. Epub 2020 Apr 12.
4
Access in the rare diseases landscape.罕见病领域的准入情况。
Lancet Glob Health. 2024 Oct;12(10):e1587. doi: 10.1016/S2214-109X(24)00341-3.
5
[The organization of pharmacovigilance in France, in Europe and worldwide - From label to delivery of an innovative treatment: what a journey! (3)].[法国、欧洲及全球的药物警戒组织——从标签到创新疗法的交付:这是一段怎样的历程!(3)]
Med Sci (Paris). 2019 Mar;35 Hors série n° 1:37-39. doi: 10.1051/medsci/2019024. Epub 2019 Apr 3.
6
Global health for rare diseases through primary care.通过初级保健实现罕见病的全球健康。
Lancet Glob Health. 2024 Jul;12(7):e1192-e1199. doi: 10.1016/S2214-109X(24)00134-7.
7
A call for global action for rare diseases in Africa.呼吁在非洲针对罕见病采取全球行动。
Nat Genet. 2020 Jan;52(1):21-26. doi: 10.1038/s41588-019-0552-2.
8
Global Health Perspective in Sarcomas and Other Rare Cancers.肉瘤及其他罕见癌症的全球健康视角
Am Soc Clin Oncol Educ Book. 2018 May 23;38:916-924. doi: 10.1200/EDBK_200589.
9
[Rare diseases -- a transnational dermatological perspective].[罕见病——跨国皮肤病学视角]
J Dtsch Dermatol Ges. 2014 Apr;12(4):367-8. doi: 10.1111/ddg.12316.
10
European Reference Networks for Rare Diseases: the vision of patients.欧洲罕见病参考网络:患者的愿景。
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s626-7. doi: 10.2450/2014.0039-14s.

引用本文的文献

1
The impact of rare diseases on the quality of life in paediatric patients: current status.罕见病对儿科患者生活质量的影响:现状
Front Public Health. 2025 Mar 24;13:1531583. doi: 10.3389/fpubh.2025.1531583. eCollection 2025.