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运动神经元病的症状管理和疾病进展监测的进展。

Advances in symptom management and in monitoring disease progression in motor neuron disease.

机构信息

Sheffield Institute for Translational Neuroscience, Division of Neuroscience, School of Medicine and Population Health, University of Sheffield, Sheffield, United Kingdom.

Sheffield Institute for Translational Neuroscience, Division of Neuroscience, School of Medicine and Population Health, University of Sheffield, Sheffield, United Kingdom.

出版信息

Int Rev Neurobiol. 2024;176:119-169. doi: 10.1016/bs.irn.2024.04.004. Epub 2024 May 22.

Abstract

The aim of supportive management of motor neuron disease is to improve survival, promote good quality of life and patient independence and autonomy whilst preparing for future progression and the end of life. Multidisciplinary specialist care aims to address the multifaceted and interacting biopsychosocial problems associated with motor neuron disease that leads to proven benefits in both survival and quality of life. This chapter will explore principles, structure and details of treatment options, and make recommendations for practice and for future research.

摘要

运动神经元病支持性治疗的目的是提高生存率,改善生活质量和患者的独立性和自主性,同时为疾病的进一步发展和生命终末期做好准备。多学科专家护理旨在解决与运动神经元病相关的多方面相互作用的生物心理社会问题,从而在生存率和生活质量方面都带来益处。本章将探讨治疗选择的原则、结构和细节,并为实践和未来研究提出建议。

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