Erzincan Binali Yıldırım University, Health Sciences Institute, Department of Nursing Principles, Erzincan, Turkey.
Erzincan Binali Yıldırım University, Faculty of Health Sciences, Erzincan, Turkey.
J Pediatr Nurs. 2024 Jul-Aug;77:e538-e545. doi: 10.1016/j.pedn.2024.05.020. Epub 2024 Jun 4.
This research was conducted to examine the caregiving burden and stress situations of mothers with children with special needs.
The research, which is descriptive and correlation-seeking, was conducted between September 2022 and September 2023 in special education and rehabilitation centers in a city in eastern Turkey. The population of the research consists of the mothers of 2072 children who received education in the specified Special Education and Rehabilitation Centers between the specified dates. The sample size was determined to be 324 individuals based on the known sampling method. "The Personal Information Form, the Zarit Caregiving Burden Scale, and the Perceived Stress Scale were used to collect the data for this study. The data was analyzed using the SPSS package software. For the interpretation of the data, percentages, means, standard deviations, one-way variance analysis, independent groups t-test, Pearson correlation, and simple linear regression were used.
Among the mothers, 44% were aged 30-39, 87.0% had a child with a disability, and 51.9% had a child with an intellectual disability. The mean total scores of the mothers were 26.71 ± 8.80 for the Zarit Caregiving Burden Scale and 27.00 ± 11.35 for the Perceived Stress Scale. There is a difference between the mothers' age, education level, income level and the type of disability of their child and the Zarit Caregiving Burden scale score average; It was determined that there was a significant difference between the place of residence and the number of disabled children they had and the average score of the Perceived Stress Scale. A positive correlation was found between Zarit Caregiving Burden Scale scores and Perceived Stress Scale scores of the mothers (p < 0.05).
The study revealed that mothers with children with special needs experienced higher levels of stress as their care burden increased. Providing economic assistance and informing and training mothers about the care of children with special needs were recommended to reduce the care burden of mothers with children with special needs.
本研究旨在探讨有特殊需要儿童的母亲的照顾负担和压力状况。
本研究为描述性和相关性研究，于 2022 年 9 月至 2023 年 9 月在土耳其东部某城市的特殊教育和康复中心进行。研究对象为在指定特殊教育和康复中心接受教育的 2072 名儿童的母亲。根据已知的抽样方法，确定样本量为 324 人。本研究采用个人信息表、Zarit 照顾负担量表和感知压力量表收集数据。采用 SPSS 软件包对数据进行分析。为了解释数据，采用百分比、平均值、标准差、单因素方差分析、独立样本 t 检验、皮尔逊相关和简单线性回归。
在母亲中，44%的年龄在 30-39 岁，87.0%的孩子有残疾，51.9%的孩子有智力残疾。母亲的 Zarit 照顾负担量表总分为 26.71±8.80，感知压力量表总分为 27.00±11.35。母亲的年龄、教育程度、收入水平、子女残疾类型与 Zarit 照顾负担量表评分平均值之间存在差异；居住地和残疾子女人数与感知压力量表平均分之间存在差异。母亲的 Zarit 照顾负担量表评分与感知压力量表评分呈正相关（p<0.05）。
本研究表明，随着照顾负担的增加，有特殊需要儿童的母亲经历了更高水平的压力。建议为有特殊需要儿童的母亲提供经济援助，并告知和培训她们照顾特殊需要儿童的方法，以减轻有特殊需要儿童的母亲的照顾负担。
