CATALAIZE, Chicago, IL, USA.
USC Leonard Davis School of Gerontology, University of Southern California, Los Angeles, CA, USA.
J Alzheimers Dis. 2024;100(1):87-117. doi: 10.3233/JAD-231491.
Globally, much work has been done by nonprofit, private, and academic groups to develop best practices for the care of people living with dementia (PLWD), including Alzheimer's disease. However, these best practices reside in disparate repositories and tend to focus on one phase of the patient journey or one relevant group.
To fill this gap, we developed a Dementia Ideal Care Map that everyone in the dementia ecosystem can use as an actionable tool for awareness, policy development, funding, research, training, service delivery, and technology design. The intended audience includes (and not limited to) policymakers, academia, industry, technology developers, health system leaders, clinicians, social service providers, patient advocates, PLWD, their families, and communities at large.
A search was conducted for published dementia care best practices and quality measures, which were then summarized in a visual diagram. The draft diagram was analyzed to identify barriers to ideal care. Then, additional processes, services, technologies, and quality measures to overcome those challenges were brainstormed. Feedback was then obtained from experts.
The Dementia Ideal Care Map summarizes the ecosystem of over 200 best practices, nearly 100 technology enablers, other infrastructure, and enhanced care pathways in one comprehensive diagram. It includes psychosocial interventions, care partner support, community-based organizations; awareness, risk reduction; initial detection, diagnosis, ongoing medical care; governments, payers, health systems, businesses, data, research, and training.
Dementia Ideal Care Map is a practical tool for planning and coordinating dementia care. This visualized ecosystem approach can be applied to other conditions.
在全球范围内，非营利组织、私营组织和学术团体在制定针对痴呆症（包括阿尔茨海默病）患者护理的最佳实践方面做了大量工作。然而，这些最佳实践分散在不同的存储库中，往往侧重于患者旅程的一个阶段或一个相关群体。
为了填补这一空白，我们开发了一个理想的痴呆症护理地图，痴呆症生态系统中的每个人都可以将其用作意识、政策制定、资金、研究、培训、服务提供和技术设计的可操作工具。目标受众包括（但不限于）政策制定者、学术界、行业、技术开发者、医疗系统领导者、临床医生、社会服务提供者、患者权益倡导者、痴呆症患者、他们的家人和广大社区。
对已发表的痴呆症护理最佳实践和质量措施进行了搜索，然后将其总结在一个可视化图表中。对草稿图表进行了分析，以确定理想护理的障碍。然后，针对这些挑战，提出了更多的流程、服务、技术和质量措施。然后从专家那里获得了反馈。
理想的痴呆症护理地图总结了 200 多项最佳实践、近 100 项技术推动者、其他基础设施和增强的护理途径，形成一个综合性的图表。它包括心理社会干预、护理伙伴支持、社区组织；意识、风险降低；初始检测、诊断、持续的医疗护理；政府、支付方、医疗系统、企业、数据、研究和培训。
痴呆症理想护理地图是规划和协调痴呆症护理的实用工具。这种可视化的生态系统方法可应用于其他疾病。
