Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK.
Bone Cancer Research Trust, Leeds, UK.
Health Expect. 2024 Jun;27(3):e14056. doi: 10.1111/hex.14056.
People living with a painful distal upper limb musculoskeletal disorder (DUL-MSD) often experience pain, difficulty in doing everyday tasks and a reduced quality of life. Currently, there are challenges in the treatment of DUL-MSDs, highlighting the need to develop innovative approaches to rehabilitation. A potential solution is to develop and implement a digital self-management rehabilitation programme focussing on optimising recovery, improving function and reducing pain. Before developing this programme, we aimed to identify the barriers and facilitators to using a digital health intervention (DHI) for self-management of DUL-MSDs.
This study aimed to investigate the potential barriers and facilitators to using a DHI with people living with DUL-MSDs and healthcare professionals (HCPs).
A qualitative exploratory study was carried out with purposely selected participants consisting of 15 participants with DUL-MSDs and 13 HCPs. Three focus groups (FGs) and four semistructured interviews with DUL-MSD participants and semistructured interviews with 13 HCPs were conducted. FGs and interviews were digitally recorded, transcribed and analysed using reflexive thematic analysis.
To address challenges in the care and management of DUL-MSDs, both HCPs and people living with a DUL-MSD welcomed the development of a DHI. This study identified several barriers and facilitators that would influence engagement with a digital intervention. Findings suggest that in developing a DHI, attention needs to be paid to digital design features, usability, tailoring, personalisation and consideration of how well usual care could be replicated digitally without direct HCP involvement.
The identified digital design features of importance to participants will inform the design of a digital self-management rehabilitation programme for people living with DUL-MSDs. Addressing the barriers and facilitators to engagement with a DHI is essential in ensuring its relevance and acceptability to those who will use it.
Patient and Public Involvement and Engagement (PPIE) was integral throughout the study. PPIE members contributed to the development and planning of this study, checked and confirmed the relevance of the findings and are involved in the dissemination plans.
患有上肢远端肌肉骨骼疼痛性疾病(DUL-MSD)的人常经历疼痛、日常活动困难和生活质量下降。目前,DUL-MSD 的治疗存在挑战,这凸显出需要开发创新的康复方法。一种潜在的解决方案是开发和实施专注于优化康复、改善功能和减轻疼痛的数字自我管理康复计划。在开发该计划之前,我们旨在确定使用数字健康干预(DHI)进行 DUL-MSD 自我管理的障碍和促进因素。
本研究旨在调查 DUL-MSD 患者和医疗保健专业人员(HCP)使用 DHI 的潜在障碍和促进因素。
进行了一项定性探索性研究,选择了 15 名患有 DUL-MSD 的参与者和 13 名 HCP 参与。对 DUL-MSD 参与者进行了 3 次焦点小组(FG)和 4 次半结构化访谈,对 HCP 进行了半结构化访谈。FG 和访谈被数字记录、转录并使用反思性主题分析进行分析。
为了应对 DUL-MSD 护理和管理方面的挑战,HCP 和患有 DUL-MSD 的人都欢迎开发 DHI。本研究确定了一些会影响数字干预参与度的障碍和促进因素。研究结果表明,在开发 DHI 时,需要关注数字设计功能、可用性、定制、个性化以及考虑在不涉及直接 HCP 的情况下,如何在数字上复制通常的护理。
参与者确定的重要数字设计功能将为 DUL-MSD 患者的数字自我管理康复计划的设计提供信息。解决与 DHI 参与相关的障碍和促进因素对于确保其对使用它的人具有相关性和可接受性至关重要。
患者和公众参与和参与(PPIE)是整个研究的重要组成部分。PPIE 成员参与了这项研究的开发和规划,检查并确认了研究结果的相关性,并参与了传播计划。