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护理负担和连贯感在精神障碍患者残疾与兄弟姐妹情绪之间的中介作用。

Mediating effects of care burden and sense of coherence between patients' disabilities and siblings' emotions in psychotic disorders.

作者信息

Shiraishi Nao, Yatsu Hiroko, Ogawa Haruka, Akechi Tatsuo

机构信息

Department of Psychiatry and Cognitive-Behavioral Medicine, Graduate School of Medical Sciences Nagoya City University Nagoya Japan.

Graduate School of Nursing Miyagi University Sendai Japan.

出版信息

PCN Rep. 2022 Nov 9;1(4):e55. doi: 10.1002/pcn5.55. eCollection 2022 Dec.

Abstract

AIM

Care burden and sense of coherence (SOC) can facilitate an understanding of how family members interpret their caregiving experiences regarding a relative with psychosis. In informal caregiving, understanding siblings' experiences in this regard is necessary to mitigate negative emotions and strengthen positive ones. This study investigated whether care burden and SOC mediate the relationship between the disabilities of patients with psychosis and their siblings' emotions.

METHODS

A nationwide online survey was used to screen and recruit adult siblings of patients with psychotic disorders. The patients' disabilities in their work lives, socializing, and family communication, the siblings' care burden and SOC, and the siblings' positive and negative emotions were assessed. Structural equation modeling (SEM) was employed to test the path model that illustrated the mediating effects of care burden and SOC on patients' disabilities and siblings' emotions.

RESULTS

The sample included 237 siblings aged 42.3 years (mean) with a male-to-female ratio of 0.88 and 237 patients with schizophrenia (80.2%) or schizoaffective disorder (19.8%). In the SEM analyses, care burden connected each of the three disabilities with the two types of emotions through the pathways in which care burden positively predicted both negative and positive emotions. Additionally, SOC functioned as a mediator between disability in family communication and both types of emotions.

CONCLUSION

Siblings' negative emotions should be alleviated through interventions aimed at suppressing the care burden and enhancing SOC to address disabilities in patients' socializing and family communication. Nevertheless, care burden might contribute to their positive emotions.

摘要

目的

照护负担和连贯感(SOC)有助于理解家庭成员如何解读他们对患有精神病亲属的照护经历。在非正式照护中,了解兄弟姐妹在这方面的经历对于减轻负面情绪和强化正面情绪是必要的。本研究调查了照护负担和SOC是否介导了精神病患者的残疾与其兄弟姐妹情绪之间的关系。

方法

采用全国范围的在线调查来筛选和招募精神病患者的成年兄弟姐妹。评估了患者在工作生活、社交和家庭沟通方面的残疾情况、兄弟姐妹的照护负担和SOC,以及兄弟姐妹的正负情绪。采用结构方程模型(SEM)来检验路径模型,该模型说明了照护负担和SOC对患者残疾及兄弟姐妹情绪的中介作用。

结果

样本包括237名平均年龄为42.3岁的兄弟姐妹,男女比例为0.88,以及237名患有精神分裂症(80.2%)或分裂情感性障碍(19.8%)的患者。在SEM分析中,照护负担通过其正向预测负面和正面情绪的路径,将三种残疾中的每一种与两种情绪联系起来。此外,SOC在家庭沟通残疾与两种情绪之间起到了中介作用。

结论

应通过旨在减轻照护负担和增强SOC的干预措施来缓解兄弟姐妹的负面情绪,以解决患者社交和家庭沟通方面的残疾问题。然而,照护负担可能有助于产生他们的正面情绪。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0eec/11114293/8ad21fec5788/PCN5-1-e55-g004.jpg

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