Zheng Lin, Long Chen, Choi Wongyu
Department of Social Welfare, Jeonbuk National University, Jeonbuk, Republic of Korea.
Health Services Management Department, Guizhou Medical University, Guiyang, China.
Front Psychiatry. 2024 Jun 4;15:1406073. doi: 10.3389/fpsyt.2024.1406073. eCollection 2024.
Caregivers of children with autism spectrum disorder (ASD) in China often experience alienation due to societal stigma. While this alienation detrimentally impacts their mental well-being, family resilience serves as a protective factor. Previous research has predominantly examined the social support derived from social activities but has neglected to delve into the specific patterns of these activities. The primary objective of this study was twofold: firstly, to gain insights into the various social activities engaged in by caregivers of children with autism in China, and secondly, to ascertain the influence of these social activities on alienation and family resilience.
Between June and August 2023, a cross-sectional survey was carried out across multiple cities in Jilin Province, aiming to gather data from a total of 205 Chinese caregivers of children with autism. Data collection was conducted through the utilization of a structured questionnaire. The assessment of social activity involved the completion of 12 questionnaires, while alienation was evaluated using the Generalized Alienation Scale (GSAS), and family resilience was gauged through the Chinese version of the Family Resilience Scale (FaRE). The classification of social activities was conducted through latent class analysis (LCA), while the impact of these social activities on alienation and family resilience was examined using linear regression analysis.
The findings revealed that social activities can be categorized into five types (Low, Self-Recreation, Communication, Web Surfing, High). Communication social activities were found to reduce family resilience(β=.332, p<0.01), while high social activities were associated with reduced alienation(β=-.349, p<0.05) and increased family resilience(β=.417, p<0.01).
Supporting these particular types of social activities has the potential to reduce alienation and bolster family resilience among caregivers for children with autism in China.
在中国,自闭症谱系障碍(ASD)儿童的照顾者常常因社会污名而感到疏离。这种疏离对他们的心理健康产生不利影响,而家庭复原力则是一个保护因素。以往的研究主要考察了从社交活动中获得的社会支持,但忽视了深入探究这些活动的具体模式。本研究的主要目的有两个:第一,深入了解中国自闭症儿童照顾者参与的各种社交活动;第二,确定这些社交活动对疏离感和家庭复原力的影响。
2023年6月至8月期间,在吉林省多个城市进行了一项横断面调查,旨在从总共205名中国自闭症儿童照顾者那里收集数据。数据收集通过使用结构化问卷进行。社交活动的评估涉及完成12份问卷,疏离感使用广义疏离感量表(GSAS)进行评估,家庭复原力通过家庭复原力量表(FaRE)中文版进行衡量。社交活动的分类通过潜在类别分析(LCA)进行,而这些社交活动对疏离感和家庭复原力的影响则使用线性回归分析进行检验。
研究结果表明,社交活动可分为五类(低、自我娱乐、交流、上网、高)。发现交流性社交活动会降低家庭复原力(β = 0.332,p < 0.01),而高社交活动与较低的疏离感(β = -0.349,p < 0.05)和较高的家庭复原力(β = 0.417,p < 0.01)相关。
支持这些特定类型的社交活动有可能减少中国自闭症儿童照顾者的疏离感,并增强他们的家庭复原力。