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开放科学时代的脑影像数据共享:如何与为何?

Sharing brain imaging data in the Open Science era: how and why?

机构信息

Department of Nuclear Medicine, Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, Germany; Institute of Neurosciences and Medicine (INM-2), Research Center Jülich, Jülich, Germany.

Radiology and Nuclear Medicine, Vrije Universiteit Medical Center, Amsterdam University Medical Center, Amsterdam, Netherlands; Amsterdam Neuroscience, Brain Imaging, Amsterdam, Netherlands.

出版信息

Lancet Digit Health. 2024 Jul;6(7):e526-e535. doi: 10.1016/S2589-7500(24)00069-4.

Abstract

The sharing of human neuroimaging data has great potential to accelerate the development of imaging biomarkers in neurological and psychiatric disorders; however, major obstacles remain in terms of how and why to share data in the Open Science context. In this Health Policy by the European Cluster for Imaging Biomarkers, we outline the current main opportunities and challenges based on the results of an online survey disseminated among senior scientists in the field. Although the scientific community fully recognises the importance of data sharing, technical, legal, and motivational aspects often prevent active adoption. Therefore, we provide practical advice on how to overcome the technical barriers. We also call for a harmonised application of the General Data Protection Regulation across EU countries. Finally, we suggest the development of a system that makes data count by recognising the generation and sharing of data as a highly valuable contribution to the community.

摘要

人类神经影像学数据的共享具有加速神经和精神疾病成像生物标志物发展的巨大潜力;然而,在开放科学背景下,如何以及为何共享数据仍然存在主要障碍。在这项由欧洲成像生物标志物集群制定的卫生政策中,我们根据在该领域资深科学家中传播的在线调查结果,概述了当前的主要机遇和挑战。尽管科学界充分认识到数据共享的重要性,但技术、法律和动机方面的因素常常阻碍了积极采用。因此,我们提供了关于如何克服技术障碍的实用建议。我们还呼吁在欧盟国家内协调适用《通用数据保护条例》。最后,我们建议开发一个系统,通过承认数据的生成和共享是对社区的极具价值的贡献,来使数据发挥作用。

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