Department of Neurology, St. Josef-Hospital, Ruhr University Bochum, 44791, Bochum, Germany.
Neurodegeneration Research, Protein Research Unit Ruhr (PURE), Ruhr University Bochum, 44801, Bochum, Germany.
J Neurol. 2024 Dec;271(12):7377-7386. doi: 10.1007/s00415-024-12546-3. Epub 2024 Jul 6.
In 2023, the German Society of Neurology published a new guideline on Parkinson's disease. An important section dealt with PD care concepts, which represent a particularly dynamic field of PD research, including their implementation in clinical practice. Parkinson's disease is the second most common age-associated neurodegenerative disease. Current estimates of the number of cases in the population describe a significant increase in prevalence in Germany by 2030 with higher proportions in rural areas, which also have a lack of sufficient PD care resources.
In comparison with other international guidelines, which have so far mentioned palliative care and Parkinson's nurses in particular, the German S2k guideline expands the recommended concepts of PD care to include PD day clinics, inpatient complex treatment, and PD networks.
Concepts of PD care guidelines are necessary because of the complex and rapidly evolving field of PD care provision. If applied appropriately, the potential for optimized care can be exploited and both the patient burden and the economic burden can be reduced. Given that modern care concepts have so far only been applied in a few regions, it is often impossible to generate broad evidence-based data, so that the evaluation of PD care concepts is partly dependent on expert opinion.
2023 年,德国神经病学学会发布了一份关于帕金森病的新指南。其中一个重要的部分涉及帕金森病护理理念,这是帕金森病研究中一个特别活跃的领域,包括在临床实践中的实施。帕金森病是第二常见的与年龄相关的神经退行性疾病。目前对人群中病例数的估计描述了德国到 2030 年患病率的显著增加,农村地区的比例更高,而这些地区也缺乏足够的帕金森病护理资源。
与迄今为止特别提到姑息治疗和帕金森病护士的其他国际指南相比,德国 S2k 指南将帕金森病护理的推荐理念扩展到包括帕金森病日间诊所、住院综合治疗和帕金森病网络。
由于帕金森病护理提供领域的复杂性和快速发展,护理指南的理念是必要的。如果适当应用,优化护理的潜力可以得到利用,患者负担和经济负担都可以减轻。鉴于现代护理理念迄今为止仅在少数地区得到应用,通常不可能产生广泛的基于证据的数据,因此对帕金森病护理理念的评估在一定程度上取决于专家意见。