Rola Jenna, Gibbs Heather, Robertson Hilary, Riley Michelle, Hamilton-Reeves Jill, Geana Mugur, Lee Eugene K
Department of Dietetics and Nutrition, University of Kansas, Kansas City, KS, USA.
Department of Urology, University of Kansas, Kansas City, KS, USA.
Bladder Cancer. 2023 Jun 27;9(2):151-157. doi: 10.3233/BLC-230021. eCollection 2023.
The treatment for patients with muscle-invasive bladder cancer includes neoadjuvant chemotherapy followed by radical cystectomy. The American Urological Association guidelines stress the optimization of patient performance status in the perioperative setting. Therefore, implementation of nutrition education is critical for the multi-disciplinary care of this vulnerable patient population and wide distribution of information is critical.
The goal of our study was to create a nutrition-based video education series for patients undergoing chemotherapy and radical cystectomy for bladder cancer.
Scripts for the videos were developed through an iterative process by experts in nutrition, urology, and communication. Providers and patient advocates were recruited to perform semi-structured interviews and surveys for additional feedback. Performer facial emotion recognition (Noldus™) was used to assess displayed emotion by the presenters. Mangold VisionPlayer software was used for participant eye movement tracking of the video content. A knowledge survey was created, and Item Content Validity Index (I-CVI) was calculated with a nutrition expert advisory board. Participants were recruited for cognitive interviewing to understand the mental processes and interpretations while answering questions.
The video series is available to the public on the Bladder Cancer Advocate Network (BCAN) website at the following URL: https://bcan.org/facing-bladder-cancer/nutrition-bladder-cancer/eating-healthy-bladder-cancer/. Cinematic filming methods, (smaller depth of field, lighting, and camera movement) enhanced message delivery along with music and text on screen to anchor important concepts.
This study can be a framework for the development of a patient education video library accessible through electronic medical records, health care applications, and patient advocacy websites.
肌肉浸润性膀胱癌患者的治疗包括新辅助化疗,随后进行根治性膀胱切除术。美国泌尿外科学会指南强调在围手术期优化患者的身体状况。因此,实施营养教育对于这一脆弱患者群体的多学科护理至关重要,广泛传播信息也至关重要。
我们研究的目的是为接受膀胱癌化疗和根治性膀胱切除术的患者创建一个基于营养的视频教育系列。
视频脚本通过营养、泌尿外科和沟通方面的专家反复研讨制定。招募医疗服务提供者和患者权益倡导者进行半结构化访谈和调查以获取更多反馈。使用表演者面部情绪识别(Noldus™)来评估主持人所表现出的情绪。使用Mangold VisionPlayer软件对视频内容进行参与者眼球运动跟踪。创建了一项知识调查,并与营养专家咨询委员会一起计算项目内容效度指数(I-CVI)。招募参与者进行认知访谈,以了解他们在回答问题时的思维过程和理解方式。
该视频系列可在膀胱癌倡导网络(BCAN)网站上向公众开放,网址如下:https://bcan.org/facing-bladder-cancer/nutrition-bladder-cancer/eating-healthy-bladder-cancer/。电影拍摄方法(较小的景深、灯光和镜头移动)与音乐和屏幕上的文字相结合,增强了信息传递效果,突出了重要概念。
本研究可为通过电子病历、医疗保健应用程序和患者权益倡导网站访问的患者教育视频库的开发提供一个框架。