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The Application of Australian Rights Protections to the Use of Hepatitis C Notification Data to Engage People 'Lost to Follow Up'.

作者信息

Saich Freya, Walker Shelley, Hellard Margaret, Stoové Mark, Seear Kate

机构信息

Burnet Institute.

Burnet Institute; Curtin University; Monash University.

出版信息

Public Health Ethics. 2024 May 17;17(1-2):40-52. doi: 10.1093/phe/phae006. eCollection 2024 Apr-Jul.


DOI:10.1093/phe/phae006
PMID:39005529
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11245707/
Abstract

Hepatitis C is a global public health threat, affecting 56 million people worldwide. The World Health Organization has committed to eliminating hepatitis C by 2030. Although new treatments have revolutionised the treatment and care of people with hepatitis C, treatment uptake has slowed in recent years, drawing attention to the need for innovative approaches to reach elimination targets. One approach involves using existing notifiable disease data to contact people previously diagnosed with hepatitis C. Within these disease surveillance systems, however, competing tensions exist, including protecting individual rights to privacy and autonomy, and broader public health goals. We explore these issues using hepatitis C and Australia's legislative and regulatory frameworks as a case study. We examine emerging uses of notification data to contact people not yet treated, and describe some of the ethical dilemmas associated with the use and non-use of this data and the protections that exist to preserve individual rights and public health. We reveal weaknesses in rights protections and processes under Australian public health and human rights legislation and argue for consultation with and involvement of affected communities in policy and intervention design before notification data is used to increase hepatitis C treatment coverage.

摘要

相似文献

[1]
The Application of Australian Rights Protections to the Use of Hepatitis C Notification Data to Engage People 'Lost to Follow Up'.

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[2]
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本文引用的文献

[1]
Changes in incidence of hepatitis C virus reinfection and access to direct-acting antiviral therapies in people with HIV from six countries, 2010-19: an analysis of data from a consortium of prospective cohort studies.

Lancet HIV. 2024-2

[2]
Treatment as prevention effect of direct-acting antivirals on primary hepatitis C virus incidence: Findings from a multinational cohort between 2010 and 2019.

EClinicalMedicine. 2022-12-30

[3]
Exhausted practical sovereignty and lateral agency: Non-uptake of treatment for hepatitis C in the antiviral era.

Int J Drug Policy. 2022-9

[4]
Hepatitis C cure as a 'gathering': Attending to the social and material relations of hepatitis C treatment.

Sociol Health Illn. 2022-4

[5]
Hepatitis C Virus Reinfection Following Direct-Acting Antiviral Treatment in the Prison Setting: The SToP-C Study.

Clin Infect Dis. 2022-11-14

[6]
New injectable antiretroviral therapy for HIV facilitates novel treatment pathways for persons without capacity to consent to medical treatment.

Australas Psychiatry. 2022-6

[7]
Global change in hepatitis C virus prevalence and cascade of care between 2015 and 2020: a modelling study.

Lancet Gastroenterol Hepatol. 2022-5

[8]
Becoming posthuman: hepatitis C, the race to elimination and the politics of remaking the subject.

Health Sociol Rev. 2021-11

[9]
Personal, provider and system level barriers and enablers for hepatitis C treatment in the era of direct-acting antivirals: Experiences of patients who inject drugs accessing treatment in general practice settings in Australia.

J Subst Abuse Treat. 2021-8

[10]
"It's time!": A qualitative exploration of the acceptability of hepatitis C notification systems to help eliminate hepatitis C.

Int J Drug Policy. 2021-11

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