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GRAPPA 2023 患者研究伙伴(PRP)网络更新:增强 PRP 在 GRAPPA 中的参与度。

GRAPPA 2023 Patient Research Partner (PRP) Network Update: Enhancing PRP Involvement Within GRAPPA.

机构信息

A. Katz, MSc, GRAPPA Patient Research Partner, Haifa, Israel;

M. de Wit, PhD, GRAPPA Patient Research Partner, Zaltbommel, the Netherlands.

出版信息

J Rheumatol. 2024 Oct 1;51(Suppl 2):9-11. doi: 10.3899/jrheum.2024-0267.

Abstract

Nine patient research partners (PRPs) attended the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) 2023 annual meeting in person in Dublin, Ireland. The importance of close relations between researchers, clinicians, and PRPs was highlighted at the PRP premeeting, with discussion regarding PRP engagement within GRAPPA with the GRAPPA leadership team. A presentation was given by PRPs at the plenary session, and there was continued active engagement of PRPs in breakout sessions, workshops, and plenary sessions compared to previous annual meetings. The GRAPPA PRP Network is committed to supporting the GRAPPA mission and contributing the unique perspectives of dedicated, knowledgeable individuals with the lived experience of psoriatic disease. This report provides a summary of the GRAPPA PRP Network meetings at the GRAPPA 2023 annual meeting and the continued commitment of the GRAPPA PRP Network to enhance PRP involvement within GRAPPA activities.

摘要

九位患者研究伙伴(PRP)亲自出席了在爱尔兰都柏林举行的 2023 年 GRAPPA 年会。在 PRP 预备会议上,研究人员、临床医生和 PRP 之间的密切关系被强调,并与 GRAPPA 领导层讨论了 PRP 在 GRAPPA 中的参与度。PRP 在全体会议上进行了演讲,与之前的年度会议相比,PRP 更积极地参与了分组会议、研讨会和全体会议。GRAPPA PRP 网络致力于支持 GRAPPA 的使命,并为 GRAPPA 活动贡献具有丰富知识和独特视角的、专门的、了解银屑病患者生活体验的个人。本报告总结了在 2023 年 GRAPPA 年会上的 GRAPPA PRP 网络会议,以及 GRAPPA PRP 网络对增强 PRP 在 GRAPPA 活动中的参与度的持续承诺。

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