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基于 FHIR 标准的股骨间截肢患者临床康复路径数据采集。

FHIR-standardized data collection on the clinical rehabilitation pathway of trans-femoral amputation patients.

机构信息

Department of Electrical, Electronic and Information Engineering "Guglielmo Marconi" - DEI, University of Bologna, Bologna, Italy.

Department of Computer Science and Engineering - DISI, University of Bologna, Bologna, Italy.

出版信息

Sci Data. 2024 Jul 20;11(1):806. doi: 10.1038/s41597-024-03593-6.

DOI:10.1038/s41597-024-03593-6
PMID:39033239
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11271302/
Abstract

Lower limb amputation is a medical intervention which causes motor disability and may compromise quality of life. Several factors determine patients' health outcomes, including an appropriate prosthetic provision and an effective rehabilitation program, necessitating a thorough quantitative observation through different data sources. In this context, the role of interoperability becomes essential, facilitating the reuse of real-world data through the provision of structured and easily accessible databases. This study introduces a comprehensive 10-year dataset encompassing clinical features, mobility measurements, and prosthetic knees of 1006 trans-femoral amputees during 1962 hospital stays for rehabilitation. The dataset is made available in both comma-separated values (CSV) format and HL7 Fast Healthcare Interoperability Resources (FHIR)-based representation, ensuring broad utility and compatibility for researchers and healthcare practitioners. This initiative contributes to advancing community understanding of post-amputation rehabilitation and underscores the significance of interoperability in promoting seamless data sharing for meaningful insights into healthcare outcomes.

摘要

下肢截肢是一种医疗干预措施，会导致运动障碍，并可能影响生活质量。有几个因素决定了患者的健康结果，包括适当的假肢配置和有效的康复计划，这需要通过不同的数据源进行全面的定量观察。在这种情况下，互操作性的作用至关重要，它通过提供结构化和易于访问的数据库，促进了真实世界数据的重复使用。本研究介绍了一个全面的 10 年数据集，其中包含 1006 名股骨截肢患者在 1962 年住院康复期间的临床特征、移动性测量和假肢膝关节。该数据集以逗号分隔值 (CSV) 格式和 HL7 Fast Healthcare Interoperability Resources (FHIR) 表示形式提供，确保了研究人员和医疗保健从业者的广泛适用性和兼容性。这一举措有助于增进社区对截肢后康复的理解，并强调了互操作性在促进无缝数据共享以实现对医疗保健结果的有意义洞察方面的重要性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7cb2/11271302/d6e04bf93f03/41597_2024_3593_Fig4_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7cb2/11271302/28c5f942dd39/41597_2024_3593_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7cb2/11271302/4ec08f2ea9fa/41597_2024_3593_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7cb2/11271302/fcd1a61f6295/41597_2024_3593_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7cb2/11271302/d6e04bf93f03/41597_2024_3593_Fig4_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7cb2/11271302/28c5f942dd39/41597_2024_3593_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7cb2/11271302/4ec08f2ea9fa/41597_2024_3593_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7cb2/11271302/fcd1a61f6295/41597_2024_3593_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7cb2/11271302/d6e04bf93f03/41597_2024_3593_Fig4_HTML.jpg

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