Rice Whitney S, Ellison Celeste K, Bruno Beverly, Hussen Sophia A, Chavez Max, Nápoles Tessa M, Walcott Melonie, Batchelder Abigail W, Turan Bulent, Kempf Mirjam-Colette, Wingood Gina M, Konkle-Parker Deborah J, Wilson Tracey E, Johnson Mallory O, Weiser Sheri D, Logie Carmen H, Turan Janet M, Piper Kendra
Department of Behavioral, Social, and Health Education Sciences, Emory University Rollins School of Public Health, Atlanta, GA, USA.
Population Health Innovation Lab, Public Health Institute, Oakland, CA, USA.
Cult Health Sex. 2025 Apr;27(4):436-450. doi: 10.1080/13691058.2024.2380765. Epub 2024 Jul 23.
Mothers living with HIV are faced with managing their own complex healthcare and wellness needs while caring for their children. Understanding the lived experiences of mothers living with HIV, including grandmothers and mothers with older children - who are less explicitly represented in existing literature, may guide the development of interventions that best support them and their families. This study sought to explore the role of motherhood and related social/structural factors on engagement with HIV care, treatment-seeking behaviour, and overall HIV management among mothers living with HIV in the USA to inform such efforts. Semi-structured interviews were conducted between June and December 2015 with 52 mothers living with HIV, recruited from the Women's Interagency HIV Study (WIHS) sites in four US cities. Five broad themes were identified from the interviews: children as a motivation for optimal HIV management; children as providing logistical support for HIV care and treatment; the importance of social support for mothers; stressors tied to responsibilities of motherhood; and stigma about being a mother living with HIV. Findings underscore the importance of considering the demands of motherhood when developing more effective strategies to support mothers in managing HIV and promoting the overall health and well-being of their families.
感染艾滋病毒的母亲在照顾孩子的同时，还要应对自身复杂的医疗保健和健康需求。了解感染艾滋病毒母亲的生活经历，包括祖母和孩子较大的母亲（现有文献中对她们的描述较少），可能会为制定最能支持她们及其家庭的干预措施提供指导。本研究旨在探讨母亲身份以及相关社会/结构因素对美国感染艾滋病毒母亲参与艾滋病毒护理、寻求治疗行为和整体艾滋病毒管理的作用，以为此类工作提供信息。2015年6月至12月期间，对从美国四个城市的妇女机构间艾滋病毒研究（WIHS）站点招募的52名感染艾滋病毒的母亲进行了半结构化访谈。从访谈中确定了五个广泛的主题：孩子是优化艾滋病毒管理的动力；孩子为艾滋病毒护理和治疗提供后勤支持；社会支持对母亲的重要性；与母亲责任相关的压力源；以及作为感染艾滋病毒母亲的耻辱感。研究结果强调，在制定更有效的策略以支持母亲管理艾滋病毒并促进其家庭的整体健康和福祉时，考虑母亲身份的要求非常重要。
