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COG-IMPACT工具的开发与初步验证方案:针对癌症相关认知障碍的专门未满足需求评估

Protocol for the Development and Initial Validation of the COG-IMPACT Tool: A Purpose-Built Unmet Needs Assessment for Cancer-Related Cognitive Impairment.

作者信息

Haywood Darren, O'Connor Moira, Baughman Frank D, Chan Alexandre, Chan Raymond J, Dauer Evan, Dhillon Haryana M, Henneghan Ashley M, Lawrence Blake J, Lustberg Maryam, Vardy Janette L, Rossell Susan L, Hart Nicolas H

机构信息

Human Performance Research Centre, INSIGHT Research Institute, Faculty of Health, University of Technology Sydney (UTS), Moore Park, NSW 2021, Australia.

Department of Mental Health, St Vincent's Hospital Melbourne, Fitzroy, VIC 3065, Australia.

出版信息

Methods Protoc. 2024 Jul 10;7(4):54. doi: 10.3390/mps7040054.

Abstract

(1) : A significant proportion of cancer survivors report experiencing a cognitive 'fog' that affects their ability to think coherently and quickly, and reason with clarity. This has been referred to as cancer-related cognitive impairment (CRCI). CRCI has extensive impacts on the daily lives of people living with or beyond cancer, including occupational, social, and psychological functioning. Oncology health professionals report feeling under-resourced to effectively assess the needs of an individual with CRCI and then provide optimal care and referral. (2) : The objective of this project is to develop and provide an initial validation of the first purpose-built unmet needs assessment for CRCI: the Unmet Needs Assessment of Cancer-Related Cognitive Impairment Impact (COG-IMPACT). We will use a multiple-stage, co-design, mixed-methods approach to develop and provide an initial validation of the COG-IMPACT. (3) : The primary anticipated result of this research is the production of the COG-IMPACT, the first purpose-built unmet needs assessment for CRCI. The assessment could be used by health professionals to understand the unmet needs and facilitate optimal care and referral for cancer survivors, by survivors to elucidate their supportive needs and advocate for their care, and by researchers to examine the correlates of unmet needs relating to CRCI, as well as how best to support people with CRCI.

摘要

(1):相当一部分癌症幸存者报告称经历了认知“迷雾”,这影响了他们连贯、快速思考以及清晰推理的能力。这被称为癌症相关认知障碍(CRCI)。CRCI对癌症患者及其康复后的日常生活有着广泛影响,包括职业、社交和心理功能。肿瘤健康专业人员表示,他们在有效评估CRCI患者的需求并提供最佳护理和转诊方面感到资源不足。(2):本项目的目标是开发并初步验证首个专门针对CRCI的未满足需求评估工具:癌症相关认知障碍影响未满足需求评估(COG-IMPACT)。我们将采用多阶段、协同设计、混合方法来开发并初步验证COG-IMPACT。(3):本研究的主要预期成果是产生COG-IMPACT,这是首个专门针对CRCI的未满足需求评估工具。健康专业人员可使用该评估工具来了解未满足的需求,并为癌症幸存者提供最佳护理和转诊;幸存者可借此阐明他们的支持需求并争取自身护理;研究人员可利用该工具研究与CRCI相关的未满足需求的关联因素,以及如何最好地支持CRCI患者。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1951/11270296/28ba898a692d/mps-07-00054-g001.jpg

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