Haywood Darren, Kelly Jamie, Sova Natalie, Lederman Oscar, Huang Bo-Huei, Dauer Evan, Joseph Jordan, Hendel Irene, Hendel David, Hart Nicolas H
Human Performance Research Centre, INSIGHT Research Institute, Faculty of Health, University of Technology Sydney (UTS), Sydney, NSW, Australia.
Department of Mental Health, St. Vincent's Hospital Melbourne, Fitzroy, VIC, Australia.
Support Care Cancer. 2024 Dec 20;33(1):42. doi: 10.1007/s00520-024-09088-9.
People affected by breast cancer experience a multitude of toxicities and unmet needs across physical, cognitive, psychosocial, and economic domains that adversely impact their quality of life. High-quality and diverse supportive care is required to improve outcomes and rehabilitation for people affected by breast cancer. However, the availability and access to high-quality supportive care services is limited due to factors including cost and demand. As such, many people affected by breast cancer do not receive optimal supportive care. The Think Pink Foundation facilitates free-of-charge supportive care services to breast cancer survivors, their families, and caregivers through 'The Living Centre'. Think Pink seeks to provide a high-quality survivorship care model that overcomes barriers associated with the economic burden of cancer. Within its suite of services, The Living Centre offers ongoing exercise classes, creative therapy, support groups, specialist breast cancer nurse consultations, wellness services, and education support through face-to-face and online service provision. This paper outlines the development, model of care, service provision, and planning for future outcomes and economic evaluation of The Living Centre as a supportive care model for others to consider establishing in their local context. This paper may therefore directly inform the development of cancer survivorship care services globally to increase equitable access to optimal supportive care.
乳腺癌患者在身体、认知、心理社会和经济等领域会经历多种毒性反应和未满足的需求，这些都会对他们的生活质量产生不利影响。为改善乳腺癌患者的治疗效果和康复情况，需要高质量、多样化的支持性护理。然而，由于成本和需求等因素，高质量支持性护理服务的可获得性和可及性有限。因此，许多乳腺癌患者无法获得最佳的支持性护理。“粉红关怀基金会”通过“生活中心”为乳腺癌幸存者、他们的家人和护理人员提供免费的支持性护理服务。“粉红关怀”旨在提供一种高质量的生存护理模式，克服与癌症经济负担相关的障碍。在其一系列服务中，“生活中心”通过面对面和在线服务提供持续的健身课程、创意疗法、支持小组、乳腺癌专科护士咨询、健康服务和教育支持。本文概述了“生活中心”作为一种支持性护理模式的发展、护理模式、服务提供情况以及未来成果规划和经济评估，供其他地区考虑在当地建立类似模式时参考。因此，本文可能会直接为全球癌症生存护理服务的发展提供参考，以增加获得最佳支持性护理的公平性。
