Department of Pediatrics, Children's Hospital of Eastern Ontario, Ottawa, Canada.
Children's Hospital of Eastern Ontario Research Institute, Ottawa, Canada.
Br J Haematol. 2024 Oct;205(4):1489-1496. doi: 10.1111/bjh.19662. Epub 2024 Jul 27.
The Kids ITP Tools (KIT) is a health-related quality of life (HRQoL) questionnaire that evaluates quality of life in children with immune thrombocytopenia (ITP). There are three formats: Child Self-Report, Parent Proxy-Report and Parent Impact-Report. This study aimed to develop a domain structure by grouping-related questions from the questionnaire into domains that independently reflect various aspects of HRQoL. The study was conducted in two phases. Phase 1 involved an online survey distributed to experts to identify conceptual domains for the KIT. Phase 2 utilized a statistical approach to analyse responses from patients with ITP and their families. A revised KIT 2.0 was ultimately developed to aid in treatment decision-making and monitoring of ITP.
儿童 ITP 工具（KIT）是一种与健康相关的生活质量（HRQoL）问卷，用于评估患有免疫性血小板减少症（ITP）的儿童的生活质量。它有三种格式：儿童自我报告、家长代理报告和家长影响报告。本研究旨在通过将问卷中的相关问题分组到独立反映 HRQoL 各个方面的领域中来建立一个领域结构。该研究分为两个阶段进行。第一阶段通过在线调查向专家分发问卷，以确定 KIT 的概念领域。第二阶段利用统计方法分析 ITP 患者及其家属的反馈。最终开发了经过修订的 KIT 2.0，以帮助做出治疗决策和监测 ITP。
