Ansari Salik, Vaswani Ravi
Centre for Ethics, Yenepoya (Deemed to be University), Mangalore, India.
Sangath, Bhopal, India.
J Bioeth Inq. 2024 Jul 29. doi: 10.1007/s11673-024-10359-7.
Perspectives of IVF users on their spare embryos is a less explored subject in the Indian context despite the country's population and abundance of IVF clinics. We conducted a qualitative study using in-depth interviews in a selected district of the Indian state of Karnataka. Seven individuals were recruited independently of any assistance from an IVF clinic. The interviews explored participants' knowledge and perception of the spare embryos using a set of guiding questions exploring the theme of the informed consent process, views on research, preferences for embryo donation, the role of family and the dynamics of decision-making, amongst other things. The interviews were qualitatively analysed using Corbin and Strauss's grounded theory approach. Our findings reveal that the participants do not learn about the prospects of spare embryos from the very start of their IVF journeys, and they may not be informed about the various options available to decide the fate of the spare embryos. Irrespective of their views on research and moral perceptions of embryos, participants expressed a sense of responsibility and ownership towards their embryos and a general reluctance to donate them. Our findings have implications for guiding future inquiries on this subject, which can better the informed consent process and unravel the role of ownership in the ethics of spare embryos in the Indian context.
尽管印度人口众多且试管婴儿诊所数量丰富,但在印度背景下,试管婴儿使用者对其备用胚胎的看法仍是一个较少被探讨的主题。我们在印度卡纳塔克邦的一个选定地区进行了一项定性研究,采用深入访谈的方式。独立于任何试管婴儿诊所的协助招募了七个人。访谈使用了一系列指导性问题,探讨了知情同意过程的主题、对研究的看法、胚胎捐赠的偏好、家庭的作用以及决策动态等,以此探究参与者对备用胚胎的了解和认知。使用科宾和施特劳斯的扎根理论方法对访谈进行了定性分析。我们的研究结果表明,参与者在试管婴儿治疗过程一开始并未了解备用胚胎的前景,而且他们可能未被告知决定备用胚胎命运的各种可用选项。无论他们对研究的看法以及对胚胎的道德认知如何,参与者都对自己的胚胎表达了责任感和所有权意识,并且普遍不愿意捐赠胚胎。我们的研究结果对指导该主题未来的探究具有启示意义,这可以改善知情同意过程,并揭示在印度背景下所有权在备用胚胎伦理中的作用。