Teehan Emily, Phord-Toy Ashley, Venkatapuram Pranaya, Kan Kathleen M
School of Medicine, Stanford University, Stanford, CA, United States.
Front Pediatr. 2024 Jul 16;12:1396003. doi: 10.3389/fped.2024.1396003. eCollection 2024.
Pediatric lower urinary tract symptoms (LUTS) are highly prevalent in neurologically healthy school-aged children. However, no evidence-based programs exist to prevent or treat LUTS in the community setting. To address this, we established the first community advisory board (CAB) that aims to identify individual and societal structures impacting pediatric bladder health in Northern California's Bay Area and co-design culturally relevant bladder health interventions.
Probability and non-probability sampling methods were used to recruit community stakeholders to the CAB. Our final CAB comprised of two parents, two community health workers, one educator, one pediatric urology registered nurse, and one pediatrician. The CAB met quarterly during the 1-year study period.
Bi-directional feedback identified community-level barriers to bladder health, particularly in the school environment, and the need for tailored resources to teach children and families about healthy bladder behaviors.
The CAB co-designed school-based bladder health interventions, including bladder health posters, and provided feedback on three school-based research study proposals. The CAB will continue to guide and inform future community-engaged research efforts.
小儿下尿路症状(LUTS)在神经功能正常的学龄儿童中非常普遍。然而,在社区环境中,尚无基于证据的预防或治疗LUTS的方案。为解决这一问题,我们成立了首个社区咨询委员会(CAB),旨在识别影响北加利福尼亚湾区小儿膀胱健康的个人和社会结构,并共同设计与文化相关的膀胱健康干预措施。
采用概率抽样和非概率抽样方法招募社区利益相关者加入CAB。我们最终的CAB由两名家长、两名社区卫生工作者、一名教育工作者、一名儿科泌尿外科注册护士和一名儿科医生组成。在为期1年的研究期间,CAB每季度召开一次会议。
双向反馈确定了膀胱健康的社区层面障碍,特别是在学校环境中,以及需要量身定制资源,向儿童和家庭传授健康的膀胱行为。
CAB共同设计了以学校为基础的膀胱健康干预措施,包括膀胱健康海报,并对三项以学校为基础的研究提案提供了反馈。CAB将继续指导并为未来的社区参与研究工作提供信息。