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从自闭症角度看跨神经类型沟通:基于焦点小组研究的自闭症心理理论见解。

Cross-neurotype communication from an autistic point of view: Insights on autistic Theory of Mind from a focus group study.

机构信息

Social Sciences Unit, Institute for Globally Distributed Open Research and Education, Gothenburg, Sweden.

Foundation COME Collaboration, Pescara, Italy.

出版信息

Int J Lang Commun Disord. 2024 Nov-Dec;59(6):2465-2482. doi: 10.1111/1460-6984.13095. Epub 2024 Jul 31.

Abstract

BACKGROUND

The conceptualisation of autism as a disorder where Theory of Mind (ToM) and pragmatics are fundamentally impaired has prompted a wealth of research on autistic deficits, most of which is characterised by two main assumptions: first, that autistic people would display said deficits, if present, with any conversation partner and in any situation; second, that neurotypical people do not present these deficits, regardless of the conversation partner. However, this is not necessarily reflected in autistic accounts of the way they experience social cognition and pragmatics.

AIMS

The present paper aims to investigate the autistic experience of communication with both autistic and neurotypical people, with a particular focus on their perception of the ability of autistic and neurotypical people to understand their communicative intentions.

METHODS & PROCEDURES: Participants, 23 adult Italian autistic people without intellectual disability or language disorders, were recruited online. Two virtual focus groups of 2 hours each were conducted, transcribed and analysed through thematic analysis with a descriptive phenomenological approach by two independent researchers.

OUTCOMES & RESULTS: Six themes were developed from the analysis, the most relevant being Autistic-Autistic communication and Autistic ToM. The results, in line with the Double Empathy theory, suggest there seem to be important differences between neurotypical and autistic people's ToM. These appear to make it easier for autistic people to communicate with one another, as well as to create difficulties for neurotypical people to understand autistic people, not just the other way around.

CONCLUSIONS & IMPLICATIONS: These results seem to confirm that challenges in cross-neurotype communication are better interpreted as mutual miscomprehension and reciprocal differences in ToM rather than deficits on the autistic part. This calls for a reframing of ToM and/or the need for autistic ToM as a construct, of which neurotypical people seem to be lacking. Moreover, these insights should be taken into account for speech and language therapy and clinical practice in general, advocating for a neurodiversity-informed view of co-constructed communication as well as for a broader societal change in which therapists can play a crucial role, through participatory approaches or raising awareness in their daily practice.

WHAT THIS PAPER ADDS

What is already known on the subject Autism is conceived as characterised by social cognition and communication difficulties, often linked to Theory of Mind (ToM) deficits. However, recent research suggested variations in ToM abilities within the autistic population and proposed alternative theories like the Double Empathy theory. Nevertheless, only a few studies examined how autistic individuals perceive communication across neurotypes. What this study adds Autistic individuals seem to find it easier to communicate with other autistic people, and they identify specific characteristics of neurotypical communication that hinder successful communication. Moreover, neurotypical people are perceived as having difficulties in autistic ToM, which seems to emerge as a relevant and needed construct in light of the Double Empathy problem. What are the clinical implications of this work? These findings can inform speech and language therapy and clinical practice about the potential gains of raising awareness on the Double Empathy problem and the higher communication ease inside the autistic community, alongside individualised support. Participatory approaches and closer collaboration with the autistic community also seem to be crucial for therapists to help improve communication experiences for autistic individuals.

摘要

背景

自闭症被概念化为一种严重受损的心智理论(Theory of Mind,ToM)和语用能力的障碍,这促使人们对自闭症的缺陷进行了大量研究,其中大部分研究都基于两个主要假设:第一,如果存在这些缺陷,自闭症患者在与任何对话伙伴和任何情况下都会表现出这些缺陷;第二,无论对话伙伴是谁,神经典型的人都不会表现出这些缺陷。然而,这并不一定反映在自闭症患者对社交认知和语用学的体验中。

目的

本研究旨在调查自闭症患者与自闭症和神经典型患者交流的体验,特别关注他们对自闭症和神经典型患者理解他们交流意图能力的看法。

方法与程序

参与者是 23 名意大利成年自闭症患者,他们没有智力障碍或语言障碍,通过在线招募。进行了两个 2 小时的虚拟焦点小组,由两名独立的研究人员通过描述性现象学方法对转录内容进行主题分析。

结果

从分析中得出了六个主题,其中最相关的是自闭症-自闭症交流和自闭症的心智理论。研究结果与双重同理心理论一致,表明神经典型和自闭症患者的心智理论似乎存在重要差异。这些差异似乎使自闭症患者更容易相互交流,同时也使神经典型患者更难理解自闭症患者,而不仅仅是相反。

结论与意义

这些结果似乎证实,跨神经类型交流中的挑战最好被解释为相互误解和同理心的互惠差异,而不是自闭症患者的缺陷。这需要重新构建心智理论,或者需要构建自闭症的心智理论,而神经典型患者似乎缺乏这种理论。此外,这些见解应该在言语和语言治疗以及一般临床实践中得到考虑,提倡以神经多样性为导向的共同构建的沟通观点,以及更广泛的社会变革,治疗师可以通过参与式方法或在日常实践中提高认识,在其中发挥关键作用。

本研究的意义在于

  • 现有的研究已经证实自闭症患者在社交认知和沟通方面存在困难,这往往与心智理论(Theory of Mind,ToM)缺陷有关。

  • 最近的研究表明,自闭症患者的心智理论能力存在差异,并提出了双重同理心理论等替代理论。

  • 然而,只有少数研究探讨了自闭症个体如何看待跨神经类型的交流。

本研究的意义在于

  • 自闭症患者似乎更容易与其他自闭症患者交流,并识别出神经典型交流中阻碍成功交流的特定特征。

  • 神经典型患者被认为在自闭症的心智理论方面存在困难,这似乎是双重同理心问题中一个相关且必要的构建。

临床意义

  • 这些发现可以为言语和语言治疗以及临床实践提供信息,提高对双重同理心问题的认识,以及自闭症社区内部更高的沟通便利性,同时提供个性化的支持。

  • 参与式方法和与自闭症社区的密切合作,对于治疗师帮助改善自闭症个体的沟通体验也至关重要。

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