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慢性阻塞性肺疾病患者的自我护理方式:混合方法案例研究。

Self-care styles of patients with chronic obstructive pulmonary disease: A mixed methods case study.

机构信息

Department of Public Health and Pediatrics, University of Torino, via Santena 5bis, 10126 Turin, Italy.

Department of Public Health and Pediatrics, University of Torino, via Santena 5bis, 10126 Turin, Italy.

出版信息

Heart Lung. 2024 Nov-Dec;68:231-241. doi: 10.1016/j.hrtlng.2024.07.011. Epub 2024 Jul 31.

Abstract

BACKGROUND

In people affected by chronic obstructive pulmonary disease (COPD), self-care is crucial for improving quality of life, decreasing symptom burden, and reducing health care-related costs. Unlike other chronic conditions, little is known about the factors that influence different self-care styles in COPD patients.

OBJECTIVES

To explore the factors that could influence the self-care styles of patients with COPD.

METHODS

A mixed methods case study design was used. Quantitative and qualitative data were collected at the same stage in a purposive sample of patients with COPD through questionnaires, interviews, and focus groups. Data were analyzed separately and then integrated to compare the cases.

RESULTS

Thirty-seven patients with COPD were recruited from an outpatient clinic, pulmonary rehabilitation unit and online in a patient support group. On average, participants scored below the level of adequacy in all self-care dimensions. Self-care maintenance was influenced by patient age, education level, and economic status. Most participants reported performing self-care behaviors, while some did not because they found it difficult or because they did not recognize their importance. When the quantitative and qualitative data of patients with higher and lower levels of self-care were integrated, four different styles of self-care were identified according to COPD severity, psychological distress and level of self-efficacy: proactive, inactive, reactive, and hypoactive.

CONCLUSIONS

Personal, clinical, psychological, and social factors not only influence the level of self-care performed by COPD patients but also contribute to the understanding of different self-care styles. This knowledge could support health care professionals in tailoring educational interventions.

摘要

背景

在患有慢性阻塞性肺疾病(COPD)的人群中,自我护理对于提高生活质量、减轻症状负担和降低与健康相关的成本至关重要。与其他慢性疾病不同,人们对影响 COPD 患者不同自我护理方式的因素知之甚少。

目的

探讨可能影响 COPD 患者自我护理方式的因素。

方法

采用混合方法案例研究设计。通过问卷、访谈和焦点小组,在一项 COPD 患者的目的抽样中同时收集定量和定性数据。数据分别进行分析,然后进行整合以比较病例。

结果

从门诊、肺康复病房和患者支持小组的在线患者中招募了 37 名 COPD 患者。平均而言,所有患者在所有自我护理维度的得分均低于达标水平。自我护理维持受到患者年龄、教育水平和经济状况的影响。大多数参与者报告进行了自我护理行为,但有些患者由于觉得困难或不重视其重要性而没有进行自我护理。当整合具有较高和较低自我护理水平的患者的定量和定性数据时,根据 COPD 严重程度、心理困扰和自我效能水平,确定了四种不同的自我护理方式:积极主动、不积极主动、被动和低活跃。

结论

个人、临床、心理和社会因素不仅影响 COPD 患者进行的自我护理水平,而且有助于理解不同的自我护理方式。这些知识可以支持医疗保健专业人员量身定制教育干预措施。

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