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“如果你心中没有黑人的未来……那么是什么在指引着这些行动”:针对创伤性脑损伤康复对充满希望的黑人未来投资的反种族主义建议。

"If you do not have Black futures in mind…then what's guiding the steps": anti-racist recommendations for traumatic brain injury rehabilitations' investments in hopeful Black futures.

作者信息

Omar Samira, Williams Charmaine C, Bugg Laura Beth, Colantonio Angela

机构信息

Rehabilitation Sciences Institute, University of Toronto, Toronto, Canada.

Factor-Inwentash Faculty of Social Work, University of Toronto, Toronto, Canada.

出版信息

Disabil Rehabil. 2025 Mar;47(5):1126-1145. doi: 10.1080/09638288.2024.2367604. Epub 2024 Aug 1.

Abstract

PURPOSE

The need for specialized rehabilitation considerations to address racial health disparities and optimize functional outcomes such as participation in daily life for Black people with traumatic brain injury (TBI) has been acknowledged. This study uses anti-racism as an entry point for addressing institutional racism by examining what the experiences of Black survivors of TBI, rehabilitation providers, and family caregivers tell us about imagined possibilities for rehabilitation to promote Black futures.

MATERIAL AND METHODS

A constructivist-informed narrative inquiry using critical race theory and in-depth narrative interviewing was applied across ten women and four men. Reflexive thematic analysis within and across groups of participants led to conceptualizing two main themes and five sub-themes.

RESULTS

Conceptualized themes captured requirements for TBI rehabilitations' investments in Black futures: (1) the need for critical information and specialized educational supports and particular requirements for supporting participation in meaningful life situations, and (2) responsibilities of delivering rehabilitation care for Black service users.

CONCLUSION

TBI rehabilitation must be tailored to the realities of living while being Black, integrate personal values, beliefs, interests, and equitable supports to maximize optimal functioning and participation if the goal of rehabilitation is community integration for all persons living with the impacts of TBI.

摘要

目的

人们已经认识到,需要进行专门的康复考量,以解决种族健康差异问题,并优化功能结果,例如让患有创伤性脑损伤(TBI)的黑人能够参与日常生活。本研究以反种族主义为切入点,通过考察TBI黑人幸存者、康复提供者和家庭照顾者的经历,了解康复方面的想象可能性,以促进黑人的未来,从而解决制度性种族主义问题。

材料与方法

对10名女性和4名男性采用了基于建构主义的叙事探究方法,运用批判种族理论并进行深入的叙事访谈。在参与者群体内部和群体之间进行反思性主题分析,从而形成了两个主要主题和五个子主题。

结果

概念化的主题体现了TBI康复对黑人未来投资的要求:(1)需要关键信息和专门的教育支持,以及支持参与有意义生活情境的特殊要求;(2)为黑人服务使用者提供康复护理的责任。

结论

如果康复的目标是让所有受TBI影响的人融入社区,那么TBI康复必须根据黑人的生活现实进行调整,整合个人价值观、信仰、兴趣和公平支持,以最大限度地实现最佳功能和参与。

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