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评估儿科到成人风湿科医疗过渡的能力、需求和满意度:过渡-kompAZ 的制定和验证。

Assessing Competencies, Needs, and Satisfaction With the Transition From Pediatric to Adult Health Care in Rheumatology: Development and Validation of the Transition-KompAZ.

机构信息

H. Haney, Charité-Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, and Deutsches Rheuma-Forschungszentrum Berlin, Leibniz Institute, Programme area Epidemiology and Health Services Research, Berlin, Germany.

J. Klotsche, PhD, M. Niewerth, MPH, Deutsches Rheuma-Forschungszentrum Berlin, Leibniz Institute, Programme area Epidemiology and Health Services Research, Berlin, Germany.

出版信息

J Rheumatol. 2024 Oct 1;51(10):1023-1032. doi: 10.3899/jrheum.2024-0097.

DOI:10.3899/jrheum.2024-0097
PMID:39089824
Abstract

OBJECTIVE

The aim of this study was to develop and psychometrically validate a self-report instrument to assess (1) competencies, (2) needs, and (3) satisfaction among youth transitioning from pediatric to adult rheumatology.

METHODS

The Transition-KompAZ was developed in several steps with conceptual and psychometric analyses. To test its psychometric properties, the instrument was administered to adolescents and young adults (AYAs; 16-25 years) with inflammatory rheumatic diseases before (group 1) or after (group 2) transfer to adult rheumatology. A 2-factor, higher-order confirmatory factor analysis (CFA) model was applied to test the hypothesized factor structure. Internal consistency was estimated using the approach of Raykov with the factor loadings and error variances estimated in the CFA. Spearman rank correlation coefficients were used to assess construct validity.

RESULTS

The Transition-KompAZ includes the following modules: (1) competencies in transition (knowledge, self-management), (2) needs (healthcare services, information), and (3) satisfaction (general, transitional care). A total of 173 AYAs (group 1: n = 86; group 2: n = 87) from 12 rheumatology sites completed the Transition-KompAZ. It showed good model fit (comparative fit index > 0.9; Tucker-Lewis index > 0.9; weighted root mean square residual < 0.9) with good internal consistency. The instrument demonstrated moderate-to-good construct validity and good test-retest reliability.

CONCLUSION

The Transition-KompAZ appears to be a reliable tool for assessing important dimensions of transition. It may support a structured and individualized transition, as well as the evaluation of transition services. However, further studies are required to assess its predictive value in terms of transfer readiness and successful transition.

摘要

目的

本研究旨在开发并对心理测量学进行验证,以评估(1)青少年从儿科向成人风湿病过渡时的能力、(2)需求和(3)满意度。

方法

采用概念和心理测量学分析,分几个步骤开发了过渡 KompAZ。为了测试其心理测量学特性,将该工具用于患有炎症性风湿病的青少年和年轻人(16-25 岁),他们在(第 1 组)转移到成人风湿病之前或之后(第 2 组)接受了评估。应用二阶验证性因子分析(CFA)模型来检验假设的因素结构。使用 Raykov 方法估计内部一致性,使用 CFA 中的因子载荷和误差方差进行估计。使用 Spearman 等级相关系数评估结构效度。

结果

过渡 KompAZ 包括以下模块:(1)过渡能力(知识、自我管理),(2)需求(医疗保健服务、信息)和(3)满意度(一般、过渡性护理)。共有来自 12 个风湿病学中心的 173 名青少年(第 1 组:n = 86;第 2 组:n = 87)完成了过渡 KompAZ。该工具具有良好的模型拟合度(比较拟合指数>0.9;Tucker-Lewis 指数>0.9;加权均方根残差<0.9),内部一致性良好。该工具具有中等至良好的结构效度和良好的重测信度。

结论

过渡 KompAZ 似乎是评估过渡重要维度的可靠工具。它可以支持结构化和个体化的过渡,以及过渡服务的评估。然而,还需要进一步的研究来评估其在转移准备和成功过渡方面的预测价值。

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