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与家长沟通关于治疗性低温和缺氧缺血性脑病:将姑息治疗方法融入实践。

Communicating with Parents About Therapeutic Hypothermia and Hypoxic Ischemic Encephalopathy: Integrating a Palliative Care Approach into Practice.

机构信息

Division of Pediatric Neurology, Department of Pediatrics, The Barbara Bush Children's Hospital at Maine Medical Center, Portland; Department of Pediatrics, Tufts University School of Medicine, Boston, MA, USA.

Department of Pediatrics, Johns Hopkins School of Medicine; Division of Perinatal-Neonatal Medicine, Department of Pediatrics, Johns Hopkins Children's Center, 1800 Orleans Street, Baltimore, MD 21287, USA; Division of Pediatric Palliative Care, Department of Pediatrics, Johns Hopkins Children's Center, 1800 Orleans Street, Baltimore, MD 21287, USA.

出版信息

Clin Perinatol. 2024 Sep;51(3):711-724. doi: 10.1016/j.clp.2024.04.009. Epub 2024 May 23.

Abstract

Parents of newborns with hypoxic ischemic encephalopathy (HIE) can face communication challenges in the neonatal intensive care unit. Both specialty palliative care and primary palliative care trained clinicians can assist parents as they navigate traumatic experiences and uncertain prognoses. Using evidence-based frameworks, the authors provide samples of how to communicate with parents and promote parent well-being across the care trajectory. The authors demonstrate how to involve parents in a shared decision-making process and give special consideration to the complexities of hospital discharge and the transition home. Sustained investment to guide the development of effective communication skills is crucial to support families of infants with HIE.

摘要

患有缺氧缺血性脑病 (HIE) 的新生儿的父母在新生儿重症监护病房可能会面临沟通挑战。接受过专科姑息治疗和初级姑息治疗培训的临床医生都可以在父母经历创伤性经历和不确定的预后时为其提供帮助。作者使用循证框架,提供了在整个护理过程中与父母沟通和促进父母福祉的示例。作者展示了如何让父母参与共同决策过程,并特别考虑到医院出院和家庭过渡的复杂性。持续投资以指导有效沟通技巧的发展对于支持患有 HIE 的婴儿的家庭至关重要。

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