Deakin Health Economics, Institute for Health Transformation, Deakin University. Burwood Hwy, Burwood, VIC 3125, Australia.
Centre for Data Linkage, School of Population Health, Curtin University. Kent St, Bentley, WA 6102, Australia.
Int J Med Inform. 2024 Nov;191:105582. doi: 10.1016/j.ijmedinf.2024.105582. Epub 2024 Jul 31.
To describe the use of privacy preserving linkage methods operationally in Australia, and to present insights and key learnings from their implementation.
Privacy preserving record linkage (PPRL) utilising Bloom filters provides a unique practical mechanism that allows linkage to occur without the release of personally identifiable information (PII), while still ensuring high accuracy.
The methodology has received wide uptake within Australia, with four state linkage units with privacy preserving capability. It has enabled access to general practice and private pathology data amongst other, both much sought after datasets previous inaccessible for linkage.
The Australian experience suggests privacy preserving linkage is a practical solution for improving data access for policy, planning and population health research. It is hoped interest in this methodology internationally continues to grow.
描述隐私保护链接方法在澳大利亚的实际应用，并介绍其实施过程中的见解和主要经验教训。
利用布隆过滤器的隐私保护记录链接（PPRL）提供了一种独特的实用机制，允许在不发布个人身份信息（PII）的情况下进行链接，同时仍能确保高度准确性。
该方法在澳大利亚得到了广泛采用，有四个具有隐私保护功能的州级链接单位。它使得访问一般实践和私人病理学数据等以前无法链接的数据集成为可能。
澳大利亚的经验表明，隐私保护链接是改善政策、规划和人口健康研究数据访问的一种实用解决方案。希望国际上对这种方法的兴趣继续增长。
