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意大利患者对湿性年龄相关性黄斑变性治疗的满意度:SWAN研究结果

Italian Patient Satisfaction with wAMD Management: SWAN Study Results.

作者信息

Peiretti Enrico, Ascardi Chiara, Bandello Francesco, Boscia Francesco, Varano Monica, Bartezaghi Marta, De Santi Lorenzo, Staurenghi Giovanni

机构信息

Clinica Oculistica, San Giovanni di Dio Hospital, Azienda Ospedaliera, Universitaria di Cagliari, Cagliari, Italy.

Novartis Farma S.p.A, Milan, Italy.

出版信息

Clin Ophthalmol. 2024 Aug 1;18:2183-2191. doi: 10.2147/OPTH.S468617. eCollection 2024.

Abstract

PURPOSE

Limited data is available on treatment satisfaction with the management of wet age-related macular degeneration (wAMD) among patients in Italy. In this cross-sectional real-world study, treatment satisfaction with anti-vascular endothelial growth factor (anti-VEGFs) was assessed in patients with wAMD in Italy.

PATIENTS AND METHODS

This was a non-interventional, cross-sectional survey involving patients with wAMD receiving anti-VEGFs. The survey was administered through a virtual assistant via phone. Patients' treatment satisfaction was assessed using a newly developed Novartis Tailored Treatment Satisfaction Questionnaire (NVS TTSQ) and the validated Macular Disease Treatment Satisfaction Questionnaire (MacTSQ).

RESULTS

Overall, 154 evaluable patients were enrolled in 5 centers across Italy. The mean (SD) age of the patients was 76.8 years (7.01). Overall treatment satisfaction score assessed by NVS TTSQ was 40.50 (7.11), with a mean of 9.97 (1.84) on the information domain and 22.98 (4.57) on the unmet need domain. Patients were satisfied with diagnosis communication (4.99 [1.30]), information provided on treatment administration (4.58 [1.49], range 0-6), the waiting room (4.40 [1.43]), and management of visits and injections at the center (5.14 [1.12]), general management of maculopathy at the center (5.22 [1.01]). Patients were not satisfied with their independence in terms of disease management (2.56 [2.45]); they would like additional information about the disease (5.38 [1.03]) and to discuss the injection procedures (4.02 [1.94]) with already-treated patients. The overall treatment satisfaction score on MacTSQ scale was 55.84 (10.13).

CONCLUSION

Patients with wAMD are satisfied with the overall management of their disease in Italy. However, patients would like to have more information on prognosis and management of the disease.

摘要

目的

关于意大利湿性年龄相关性黄斑变性(wAMD)患者对治疗的满意度,现有数据有限。在这项横断面真实世界研究中,对意大利wAMD患者使用抗血管内皮生长因子(抗VEGF)治疗的满意度进行了评估。

患者与方法

这是一项非干预性横断面调查,涉及接受抗VEGF治疗的wAMD患者。该调查通过虚拟助手通过电话进行。使用新开发的诺华定制治疗满意度问卷(NVS TTSQ)和经过验证的黄斑疾病治疗满意度问卷(MacTSQ)评估患者的治疗满意度。

结果

总体而言,意大利5个中心共纳入了154例可评估患者。患者的平均(标准差)年龄为76.8岁(7.01)。NVS TTSQ评估的总体治疗满意度得分为40.50(7.11),其中信息领域平均得分为9.97(1.84),未满足需求领域平均得分为22.98(4.57)。患者对诊断沟通(4.99[1.30])、治疗给药信息(4.58[1.49],范围0 - 6)、候诊室(4.40[1.43])以及中心的就诊和注射管理(5.14[1.12])、中心黄斑病变的总体管理(5.22[1.01])感到满意。患者对疾病管理方面的独立性不满意(2.56[2.45]);他们希望获得更多关于疾病的信息(5.38[1.03]),并希望与已接受治疗的患者讨论注射程序(4.02[另一个1.94])。MacTSQ量表的总体治疗满意度得分为55.84(10.13)。

结论

意大利的wAMD患者对其疾病的总体管理感到满意。然而,患者希望获得更多关于疾病预后和管理的信息。 (原文中“4.02 [1.94]”第二个1.94疑似有误,根据语境推测可能是1.94,翻译时保留原文形式)

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/346b/11299720/c41d084357e8/OPTH-18-2183-g0001.jpg

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