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囊性纤维化中的营养与行为健康:饮食与身体形象。

Nutrition and behavioral health in cystic fibrosis: Eating and body image.

机构信息

Department of Psychiatry, Children's Hospital Colorado, University of Colorado School of Medicine, Aurora, Colorado, USA.

Department of Psychiatry, Boston Children's Hospital, Harvard Medical School, Boston, Massachusetts, USA.

出版信息

Pediatr Pulmonol. 2024 Sep;59 Suppl 1:S36-S43. doi: 10.1002/ppul.26870.

Abstract

People with CF (pwCF) are at high risk for malnutrition, making nutritional management a critical aspect of CF care. Over the past several decades, optimal nutritional status for pwCF has been defined by body mass index (BMI) based on evidence linking suboptimal BMI to decreased lung function and life expectancy, although more recent changes in CF care may also bring changes to how nutritional health is defined. The historical focus on weight, BMI, and nutrition as key parts of multidisciplinary CF care starting at an early age places pwCF at increased risk for body image concerns and disordered eating. The landscape of CF care is evolving with the approval of highly effective modulator therapies (HEMT) and resulting improvements in growth; however, issues related to body image and eating remain important to consider, especially as past difficulties gaining weight may shift to discomfort with one's weight gain and/or physical appearance. This review aims to describe how body image concerns and disordered eating occur in pwCF across the lifespan; to discuss evidence-based approaches to addressing these concerns; and to identify future directions for research and clinical practice in assessing and treating eating disorders and body image concerns in this population.

摘要

患有 CF(pwCF)的人存在营养不良的高风险,因此营养管理是 CF 护理的关键方面。在过去的几十年中,pwCF 的最佳营养状况是通过基于证据的体重指数(BMI)定义的,这些证据表明 BMI 不达标与肺功能下降和预期寿命缩短有关,尽管 CF 护理的最新变化也可能改变对营养健康的定义。历史上,从早期开始,体重、BMI 和营养就被视为多学科 CF 护理的关键部分,这使得 pwCF 更容易出现身体形象问题和饮食失调。随着高效调节剂治疗(HEMT)的批准和生长方面的显著改善,CF 护理领域正在发生变化;然而,与身体形象和饮食相关的问题仍然是需要考虑的重要问题,尤其是过去体重增加困难可能会转变为对体重增加和/或身体外观的不适。本综述旨在描述在整个生命周期中 pwCF 中身体形象问题和饮食失调的发生情况;讨论解决这些问题的循证方法;并确定在评估和治疗该人群中的饮食失调和身体形象问题方面的未来研究和临床实践方向。

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