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医疗保健专业人员对临终时人类尊严损害的定量评估:来自德国的一项试点研究。

Impairments of Human Dignity at the End of Life Quantitatively Assessed by Health Care Professionals: A Pilot Study From Germany.

作者信息

Derler Florian, Mielke Emilia L

机构信息

Department of Palliative Medicine, Heidelberg University Hospital, Heidelberg, Germany.

Department of Palliative Medicine, CS Hospiz Rennweg in cooperation with Hospital of the Merciful Sisters, Vienna, Austria.

出版信息

Am J Hosp Palliat Care. 2025 Jun;42(6):580-586. doi: 10.1177/10499091241268573. Epub 2024 Aug 7.

DOI:10.1177/10499091241268573
PMID:39109650
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11915758/
Abstract

BackgroundEmpirical investigations on health care professionals' (HCPs) perception of dignity have already spotted common themes in preserving dignity in end-of-life care. However, heterogenic assessment results of varying HCP groups exist. This pilot study wants to provide further evidence on HCPs' rating of dignity-impairing aspects based on a patient-centered concept, especially regarding different underlying job profiles and other professional characteristics.MethodsIn a quantitative study design, the rating of dignity-impairing factors in end-of-life care via an adapted version of the (aPDI) was assessed. Participants of the relevant professional groups were recruited via convenience sampling from a region of Germany.ResultsFrom the final sample of participants, 229 questionnaires were analyzed. The overall importance of each dignity-impairing aspect in end-of-life care was considered to be very high by all different HCP groups. Nonetheless, ratings differed between professions: nursing staff had the highest ratings of importance compared to both physicians and individuals with multiple occupations. Participants with previous knowledge in bioethics also rated some aspects as more important compared to those without this feature.ConclusionWith the findings of this investigation, an insight of how professionals rate impairments of dignity at the end of life based on a patient-centered concept is given. Thus, a link between empirical research and medical ethics is added. Potential normative implications for HCPs in practice of a dignified care can be derived, consisting of actively addressing social topics as well as further stressing ethics as a fundamental subject in the training and continuing education.

摘要

背景

关于医护人员(HCPs)对尊严认知的实证研究已经发现了在临终关怀中维护尊严的共同主题。然而,不同医护人员群体的评估结果存在异质性。这项试点研究旨在基于以患者为中心的理念,就医护人员对尊严受损方面的评级提供进一步证据,特别是关于不同的潜在工作岗位和其他职业特征。

方法

在一项定量研究设计中,通过改编版的[具体量表名称未给出](aPDI)评估临终关怀中尊严受损因素的评级。相关专业群体的参与者通过便利抽样从德国一个地区招募。

结果

从最终的参与者样本中,分析了229份问卷。所有不同的医护人员群体都认为临终关怀中每个尊严受损方面的总体重要性非常高。尽管如此,不同职业之间的评级存在差异:与医生和从事多种职业的人员相比,护理人员对重要性的评级最高。与没有生物伦理知识的参与者相比,有生物伦理知识的参与者也认为某些方面更重要。

结论

通过这项调查的结果,我们了解了专业人员如何基于以患者为中心的理念对临终时尊严受损情况进行评级。因此,增加了实证研究与医学伦理之间的联系。可以得出对医护人员在尊严护理实践中的潜在规范性影响,包括积极解决社会话题以及进一步强调伦理作为培训和继续教育中的基础学科。

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Impact of the COVID-19 Pandemic on the Perceived Quality of Palliative Care in Nursing Homes.新冠疫情对养老院姑息治疗感知质量的影响。
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The Inconvenient Truth About Convenience and Purposive Samples.关于便利样本和有目的样本的尴尬真相。
Indian J Psychol Med. 2021 Jan;43(1):86-88. doi: 10.1177/0253717620977000. Epub 2020 Dec 17.
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The Medical Ethics Curriculum in Medical Schools: Present and Future.医学院校的医学伦理课程:现状与未来。
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