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急诊科中晚期疾病患者尊严受到的威胁:一项定性研究。

Threats to the Dignity of People with Advanced Illness Who Are Treated in Emergency Departments: A Qualitative Study.

作者信息

Fernández-Férez Alba, Berthe-Kone Ousmane, Granero-Heredia Gonzalo, Correa-Casado Matías, Jiménez-Lasserrotte María Del Mar, Martínez-Bordajandi Álvaro, Granero-Molina José

机构信息

International Doctoral School, University of Almeria, 04120 Almeria, Spain.

Servicio Andaluz de Salud, 04005 Almeria, Spain.

出版信息

Healthcare (Basel). 2024 Dec 22;12(24):2581. doi: 10.3390/healthcare12242581.

DOI:10.3390/healthcare12242581
PMID:39766008
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11727746/
Abstract

BACKGROUND

Dignity is a key element in end-of-life care. Patients with advanced illness attend the emergency department to seek symptom relief but may find their dignity under threat in these services.

OBJECTIVE

The purpose of the study was to explore the threats to dignity perceived by people with advanced illnesses who are treated in emergency departments.

METHODS

A descriptive qualitative study was designed for which 18 patients with advanced illnesses were interviewed after being seen in an emergency department. The study complied with the principles of the Declaration of Helsinki for medical research involving human subjects.

RESULTS

Two themes were developed from the data analysis that shed light on how patients with advanced illnesses perceive threats to their dignity when seen in emergency departments: (1) "when care focused on diagnosis and treatment limits the dignity of the patient with advanced illness" and (2) "the social dimension of dignity in people with advanced illness in emergency departments".

CONCLUSIONS

We conclude that the structural, organizational, and care characteristics of emergency departments may pose a threat to the dignity of people with advanced illnesses who attend the emergency department. Family members, professionals, and other patients can both guarantee and threaten the dignity of people with advanced illnesses when they are treated in emergency departments.

摘要

背景

尊严是临终关怀的关键要素。晚期疾病患者前往急诊科寻求症状缓解,但可能会发现在这些服务中他们的尊严受到威胁。

目的

本研究的目的是探讨在急诊科接受治疗的晚期疾病患者所感受到的尊严威胁。

方法

设计了一项描述性定性研究,对18名在急诊科就诊后的晚期疾病患者进行了访谈。该研究遵循了涉及人类受试者的医学研究《赫尔辛基宣言》的原则。

结果

数据分析得出了两个主题,揭示了晚期疾病患者在急诊科就诊时如何感知其尊严受到的威胁:(1)“当以诊断和治疗为重点的护理限制了晚期疾病患者的尊严”以及(2)“急诊科中晚期疾病患者尊严的社会层面”。

结论

我们得出结论,急诊科的结构、组织和护理特点可能会对前往急诊科就诊的晚期疾病患者的尊严构成威胁。当晚期疾病患者在急诊科接受治疗时,家庭成员、专业人员和其他患者既可以保障也可能威胁到他们的尊严。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/045f/11727746/ed7b2ef06ec1/healthcare-12-02581-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/045f/11727746/ed7b2ef06ec1/healthcare-12-02581-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/045f/11727746/ed7b2ef06ec1/healthcare-12-02581-g001.jpg

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本文引用的文献

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Therapeutic Obstinacy in End-of-Life Care-A Perspective of Healthcare Professionals from Romania.临终关怀中的治疗顽固性——罗马尼亚医疗保健专业人员的视角
Healthcare (Basel). 2024 Aug 10;12(16):1593. doi: 10.3390/healthcare12161593.
2
Impairments of Human Dignity at the End of Life Quantitatively Assessed by Health Care Professionals: A Pilot Study From Germany.医疗保健专业人员对临终时人类尊严损害的定量评估:来自德国的一项试点研究。
Am J Hosp Palliat Care. 2025 Jun;42(6):580-586. doi: 10.1177/10499091241268573. Epub 2024 Aug 7.
3
End-Of-Life Cancer Patients' Dignity Perception Before and During COVID-19 Pandemic.
新冠疫情之前及期间临终癌症患者的尊严感
Am J Hosp Palliat Care. 2025 Aug;42(8):840-848. doi: 10.1177/10499091241267878. Epub 2024 Jul 24.
4
Facing off-time mortality: Leaving a legacy.面对临终时刻:留下遗产。
Psychol Aging. 2024 Jun;39(4):400-412. doi: 10.1037/pag0000815. Epub 2024 Apr 11.
5
Understanding the Utility of Less Than Six-Month Prognosis Using Administrative Data Among U.S. Nursing Home Residents With Cancer.利用行政数据了解美国癌症疗养院居民不到六个月预后的效用。
Palliat Med Rep. 2024 Mar 28;5(1):127-135. doi: 10.1089/pmr.2023.0047. eCollection 2024.
6
Beyond mere respect: new perspectives on dignity for healthcare workplace learning.超越单纯的尊重:医疗保健工作场所学习中尊严的新视角。
Front Med (Lausanne). 2024 Jan 16;10:1274364. doi: 10.3389/fmed.2023.1274364. eCollection 2023.
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Reflections of nursing students on the care of the person's dignity at the end of life: A qualitative study.护理专业学生对临终患者尊严照护的思考:一项质性研究。
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