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缺失的环节。生理数据作为识别重度智力和多重残疾者情绪的一个因素。

The missing piece. Physiological data as a factor for identifying emotions of people with profound intellectual and multiple disabilities.

作者信息

Hammann Torsten, Valič Jakob, Slapničar Gašper, Luštrek Mitja

机构信息

Heidelberg University of Education, Heidelberg, Germany.

Jožef Stefan Institute, Ljubljana, Slovenia.

出版信息

Int J Dev Disabil. 2022 Dec 15;70(5):887-903. doi: 10.1080/20473869.2022.2154928. eCollection 2024.

DOI:10.1080/20473869.2022.2154928
PMID:39131753
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11308966/
Abstract

The preferences of people with profound intellectual and multiple disabilities (PIMD) often remain unfulfilled since it stays challenging to decode their idiosyncratic behavior resulting in a negative impact on their quality of life (QoL). Physiological data (i.e. heart rate (variability) and motion data) might be the missing piece for identifying emotions of people with PIMD, which positively affects their QoL. Machine learning (ML) processes and statistical analyses are integrated to discern and predict the potential relationship between physiological data and emotional states (i.e. numerical emotional states, descriptive emotional states and emotional arousal) in everyday interactions and activities of two participants with PIMD. Emotional profiles were created enabling a differentiation of the individual emotional behavior. Using ML classifiers and statistical analyses, the results regarding the phases partially confirm previous research, and the findings for the descriptive emotional states were good and even better for the emotional arousal. The results show the potential of the emotional profiles especially for practitioners and the possibility to get a better insight into the emotional experience of people with PIMD including physiological data. This seems to be the missing piece to better recognize emotions of people with PIMD with a positive impact on their QoL.

摘要

重度智力和多重残疾(PIMD)患者的偏好往往难以实现,因为解读他们独特的行为具有挑战性,这会对他们的生活质量(QoL)产生负面影响。生理数据(即心率(变异性)和运动数据)可能是识别PIMD患者情绪的关键因素,这对他们的生活质量有积极影响。机器学习(ML)过程和统计分析相结合,以识别和预测两名PIMD参与者在日常互动和活动中生理数据与情绪状态(即数字情绪状态、描述性情绪状态和情绪唤醒)之间的潜在关系。创建了情绪档案,以便区分个体的情绪行为。使用ML分类器和统计分析,各阶段的结果部分证实了先前的研究,描述性情绪状态的结果良好,情绪唤醒的结果更好。结果显示了情绪档案的潜力,特别是对从业者而言,以及深入了解PIMD患者情绪体验(包括生理数据)的可能性。这似乎是更好地识别PIMD患者情绪的关键因素,对他们的生活质量有积极影响。

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本文引用的文献

1
The perspectives of professional caregivers on quality of life of persons with profound intellectual and multiple disabilities: a qualitative study.专业护理人员对重度智力残疾和多重残疾患者生活质量的看法:一项定性研究。
Int J Dev Disabil. 2020 Mar 14;68(2):190-197. doi: 10.1080/20473869.2020.1737469. eCollection 2022.
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The effects of a bioresponse system on the joint attention behaviour of adults with visual and severe or profound intellectual disabilities and their affective mutuality with their caregivers.生物反应系统对有视觉障碍和严重或极重度智力残疾的成年人及其照顾者的共同注意行为及其情感互惠的影响。
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The emotional experience of people with intellectual disability: an analysis using the international affective pictures system.智力残疾者的情感体验:使用国际情感图片系统的分析。
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Strategies that facilitate participation in family activities of children and adolescents with profound intellectual and multiple disabilities: parents' and personal assistants' experiences.促进重度智力残疾及多重残疾儿童和青少年参与家庭活动的策略:父母和个人助理的经验
Disabil Rehabil. 2014;36(25):2169-77. doi: 10.3109/09638288.2014.895058. Epub 2014 Mar 4.
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Towards improved ways of knowing children with profound multiple disabilities: introducing startle reflex modulation.寻求了解重度多重残疾儿童的更好方法:引入惊吓反射调节法。
Dev Neurorehabil. 2013 Oct;16(5):340-4. doi: 10.3109/17518423.2012.737039.
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See me, feel me. Using physiology to validate behavioural observations of emotions of people with severe or profound intellectual disability.看见我,感受我。利用生理学验证严重或极重度智力残疾者的情绪行为观察。
J Intellect Disabil Res. 2013 May;57(5):452-61. doi: 10.1111/jir.12030. Epub 2013 Mar 7.
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Physiological measurements as validation of alertness observations: an exploratory case study of three individuals with profound intellectual and multiple disabilities.生理测量作为警觉性观察的验证:对三名严重智力和多重残疾个体的探索性案例研究。
Intellect Dev Disabil. 2012 Aug;50(4):300-10. doi: 10.1352/1934-9556-50.4.300.
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The tell-tale: what do heart rate; skin temperature and skin conductance reveal about emotions of people with severe and profound intellectual disabilities?明显特征:心率、皮肤温度和皮肤电传导能揭示严重和极重度智力障碍者的情绪吗?
Res Dev Disabil. 2012 Jul-Aug;33(4):1117-27. doi: 10.1016/j.ridd.2012.02.006. Epub 2012 Mar 3.