Gorostegui-Obanos Maite, Chantada Luisa, Filho Nevicolino Pereira Carvalho, Gonzalez-Ramella Oscar, Serrano B María J, Valencia Diana, Sampor Claudia, Macedo Carla, Ramirez Oscar, Sardinas Susan, Lezcano Eva, Calderón Patricia, Gamboa Yessika, Fu Ligia, Gómez Wendy, Schelotto Magdalena, Ugaz Cecilia, Lobos Pablo, Moreno Katiuska, Palma Julia, Sánchez Gisella, Moschella Filomena, Gassant Pascale Yola Heurtelou, Velasquez Thelma, Quintero Karina, Forteza Mariuska, Villarroel Milena, Moreno Florencia, Alabi Soad Fuentes, Vasquez Liliana, Lowe Jennifer, Cappellano Andrea, Challinor Julia, Chantada Guillermo L
Pediatric Cancer Center Barcelona (PCCB), Hospital Sant Joan de Déu, Barcelona, Spain.
Hospital Italiano, Buenos Aires, Argentina.
Pediatr Blood Cancer. 2024 Nov;71(11):e31262. doi: 10.1002/pbc.31262. Epub 2024 Aug 12.
The International Society of Paediatric Oncology Society Global Mapping Program aims to describe the local pediatric oncology capacities. Here, we report the data from Latin America.
A 10-question survey was distributed among chairs of pediatric oncology services. Centers were classified according to patient volume into high- (HVC; 100 or more new cases per year), medium- (MVC; 31-99 cases), and low-volume centers (LVC; 30 cases or less), respectively. National referral centers (NRC) were identified.
Total 307 centers in 20 countries were identified (271 responded), and 264 responses were evaluable, accounting for 78% of the expected cases (21,359 cases per year). Seventy-seven percent of patients are treated in public centers, including additional support by civil society organizations. We found that 66% of the patients are treated in 70 centers of excellence, including 21 NRC. There was a median of one pediatric oncologist every 21 newly diagnosed patients (44 for NRC), and in 84% of the centers, nurses rotated to other services. A palliative care team was lacking in 25% of the centers. LVC with public funding have significantly lower probability of having a palliative care team or trained pediatric oncology surgeons. Psychosocial, pharmacy, and nutrition services were available in more than 93% of the centers. No radiotherapy facility was available on campus in nine of 21 NRC.
Most children with cancer in Latin America are treated in public HVC. There is a scarcity of pediatric oncologists, specialized nurses and surgeons, and palliative care teams, especially in centers with public funding.
国际儿科肿瘤学会全球测绘项目旨在描述当地儿科肿瘤治疗能力。在此，我们报告拉丁美洲的数据。
向儿科肿瘤服务负责人发放了一份包含10个问题的调查问卷。各中心根据患者数量分别分为高容量中心（HVC；每年100例或更多新病例）、中容量中心（MVC；31 - 99例）和低容量中心（LVC；30例或更少）。确定了国家转诊中心（NRC）。
在20个国家共确定了307个中心（271个做出回应），其中264份回应可用于评估，占预期病例数的78%（每年21359例）。77%的患者在公共中心接受治疗，包括民间社会组织提供的额外支持。我们发现，66%的患者在70个卓越中心接受治疗，其中包括21个国家转诊中心。每21例新诊断患者中平均有1名儿科肿瘤医生（国家转诊中心为44名），并且在84%的中心，护士会轮岗到其他科室。25%的中心缺乏姑息治疗团队。获得公共资金的低容量中心拥有姑息治疗团队或受过培训的儿科肿瘤外科医生的可能性显著较低。超过93%的中心提供心理社会、药学和营养服务。21个国家转诊中心中有9个中心内没有放疗设施。
拉丁美洲大多数癌症患儿在公共高容量中心接受治疗。儿科肿瘤医生、专科护士和外科医生以及姑息治疗团队短缺，尤其是在获得公共资金的中心。
