Department of Rheumatology, The Affiliated Changzhou No.2 People's Hospital of Nanjing Medical University, Changzhou, China.
Department of Nursing, Nanjing Medical University, Nanjing, China.
Jpn J Nurs Sci. 2024 Oct;21(4):e12616. doi: 10.1111/jjns.12616. Epub 2024 Aug 13.
To understand the status of internalized stigma in patients with rheumatoid arthritis (RA) and explore its relationship with self-esteem, social support, and coping style.
This cross-sectional study selected patients with RA who visited the Rheumatology and Immunology Department of a tertiary hospital from May 2022 to May 2023. The Chinese versions of the Internalized Stigma of Mental Illness Scale-Rheumatoid Arthritis (ISMI-RA), Social Support Rating Scale, Rosenberg Self-Esteem Scale, and Medical Coping Style Questionnaire were administered to assess the internalized stigma, social support, self-esteem, and coping styles, respectively. The Pearson correlation test or Spearman rank correlation was then used to analyze the correlation between these measures.
Overall, 69.5% participants reported high level of internalized stigma. The average age of the 174 participants was 52.67 ± 12.24 years, with 87.36 per cent female patients. The mean ISMI-RA score was 54.49 ± 9.62, and the ISMI-RA subscale with the highest average score was alienation. The Pearson's correlations show that internalized stigma was positively associated with the coping styles of avoidance (r = .212, p < .01) and acceptance (r = .560, p < .01), and that internalized stigma was negatively associated with the coping styles of confrontation (r = -.479, p < .01), social support (r = -.570, p < .01), and self-esteem(r = -.512, p < .05).
The high level of internalized stigma in RA patients suggests that we should develop interventions to improve patients' self-esteem, encourage them to adopt positive coping styles, and gain more social support for them, so as to alleviate their internalized stigma.
了解类风湿关节炎(RA)患者内化污名的现状,并探讨其与自尊、社会支持和应对方式的关系。
本横断面研究于 2022 年 5 月至 2023 年 5 月选取在某三甲医院风湿免疫科就诊的 RA 患者,采用中文版精神病内化污名量表-类风湿关节炎(ISMI-RA)、社会支持评定量表、罗森伯格自尊量表和医学应对方式问卷对患者进行评估,分别评估内化污名、社会支持、自尊和应对方式。然后采用 Pearson 相关检验或 Spearman 秩相关分析这些指标之间的相关性。
共有 69.5%的参与者报告了较高水平的内化污名。174 名参与者的平均年龄为 52.67±12.24 岁,其中 87.36%为女性患者。ISMI-RA 平均得分为 54.49±9.62,其中平均得分最高的 ISMI-RA 亚量表为疏离。Pearson 相关分析显示,内化污名与回避(r=.212,p<.01)和接受(r=.560,p<.01)应对方式呈正相关,与面对(r=-.479,p<.01)、社会支持(r=-.570,p<.01)和自尊(r=-.512,p<.05)应对方式呈负相关。
RA 患者内化污名水平较高,提示我们应制定干预措施,提高患者自尊,鼓励患者采用积极的应对方式,为患者争取更多的社会支持,以减轻其内化污名。