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农村地区神经发育障碍儿童父母的有效家长介导干预措施的特征:系统评价方案。

Characteristics of effective parent-mediated interventions for parents of children with neurodevelopmental disorders in rural areas: a systematic review protocol.

机构信息

School of Allied Health, Exercise & Sport Sciences, Charles Sturt University, Albury/Port Macquarie, New South Wales, Australia.

School of Allied Health, Exercise & Sport Sciences, Charles Sturt University, Albury/Port Macquarie, New South Wales, Australia

出版信息

BMJ Open. 2024 Aug 13;14(8):e083464. doi: 10.1136/bmjopen-2023-083464.

DOI:10.1136/bmjopen-2023-083464
PMID:39142676
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11331994/
Abstract

INTRODUCTION

Parent-mediated interventions are therapeutic approaches that use parent training to enable parents to provide primary support and intervention to their child through the development of necessary skills, knowledge, and resources.Parent-mediated interventions can be broadly divided into two stages: (1) Clinicians educating, training and coaching parents in the implementation of an intervention and relevant information regarding their child's condition and (2) Parent(s) mediating and implementing the intervention based on the coaching and education received. These interventions can act as the primary intervention for children or supplement clinical interventions. This review will include both stages of the implementation process as well as both primary and supplementary interventions. Outcomes of parent-mediated interventions include long-term symptom reduction, improved prognosis for a wide range of behavioural and brain functions and enhanced parent-child dyadic social communication.

METHODS AND ANALYSIS

This systematic review aims to synthesise existing evidence and identify the characteristics of effective parent-mediated intervention for parents of children with neurodevelopmental disorders residing in rural areas. Systematic searches of CINAHL, PsycINFO, ProQuest allied health and nursing database, Ebscohost Psych and Behavioural database and SocINDEX were conducted twice with the latest completed on 5 March 2024 using preidentified search terms. Citations will be imported into EndNote V.20.6 (Clarivate Analytics, Pennsylvania, USA) to organise and de-duplicate and then Covidence to complete screening and extraction. The articles will be screened and reviewed following the Joanna Briggs Institute (JBI) guidelines for systematic reviews of Mixed methods. The JBI appraisal tools for systematic reviews will be used to assess the trustworthiness, relevance and results of qualitative, quantitative and mixed-methods studies. The scope of the literature analysed will include articles published between 2013 and 2024 in English. Literature was limited to the last 10 years to ensure the relevance of results as the intention is to report on current evidence. The start date of the study was March 2023 and the planned completion date is October 2024.

ETHICS AND DISSEMINATION

This study will neither involve human nor animal subjects and does not require ethics approval. Results will be disseminated to relevant groups in peer-reviewed journal(s) and at relevant children and parent health conferences or rural conferences. The key outcomes will also be shared on social media to support access for non-research audiences.

摘要

介绍

家长介导的干预措施是一种治疗方法,通过家长培训使父母能够通过发展必要的技能、知识和资源,为孩子提供主要支持和干预。家长介导的干预措施可以大致分为两个阶段:(1)临床医生向父母传授、培训和指导干预措施,并提供有关孩子病情的相关信息;(2)父母根据所接受的培训和教育来进行干预。这些干预措施可以作为儿童的主要干预措施,也可以作为临床干预措施的补充。本综述将包括实施过程的两个阶段以及主要和补充干预措施。家长介导的干预措施的结果包括长期症状减轻、广泛的行为和大脑功能预后改善以及增强了亲子二元社会交流。

方法和分析

本系统评价旨在综合现有证据,并确定针对居住在农村地区的神经发育障碍儿童的父母的有效家长介导干预措施的特征。使用预先确定的搜索词,对 CINAHL、PsycINFO、ProQuest 联合健康和护理数据库、Ebscohost 心理和行为数据库以及 SocINDEX 进行了两次系统搜索,最近一次完成于 2024 年 3 月 5 日。将引文导入 EndNote V.20.6(Clarivate Analytics,宾夕法尼亚州,美国)进行组织和去重,然后使用 Covidence 完成筛选和提取。文章将按照乔安娜·布里格斯研究所(JBI)的混合方法系统评价指南进行筛选和审查。JBI 系统评价工具将用于评估定性、定量和混合方法研究的可信度、相关性和结果。分析文献的范围将包括 2013 年至 2024 年期间以英文发表的文章。文献仅限于过去 10 年,以确保结果的相关性,因为目的是报告当前的证据。研究开始日期为 2023 年 3 月,计划完成日期为 2024 年 10 月。

伦理和传播

本研究既不涉及人类也不涉及动物受试者,因此不需要伦理批准。结果将在同行评议的期刊上以及在相关的儿童和家长健康会议或农村会议上向相关团体传播。主要结果也将在社交媒体上分享,以支持非研究受众的访问。

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本文引用的文献

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Managing Autism Spectrum Disorder in the Face of Pandemic Using Internet-Based Parent-Mediated Interventions: A Systematic Review of Randomized Controlled Trials.利用基于互联网的家长介导干预措施应对疫情期间的自闭症谱系障碍:随机对照试验的系统评价
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