Don't call me "Sickler": Confronting stigma in sickle cell disease.
作者信息
Olayemi Edeghonghon
机构信息
Department of Hematology University of Ghana Medical School Accra Ghana.
出版信息
Hemasphere. 2024 Aug 13;8(8):e137. doi: 10.1002/hem3.137. eCollection 2024 Aug.
Abstract
摘要
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Hemasphere. 2024 Aug 13;8(8):e137. doi: 10.1002/hem3.137. eCollection 2024 Aug.
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本文引用的文献
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Barriers and Facilitators of Premarital Genetic Counseling for Sickle Cell Disease in Northern Nigeria.尼日利亚北部镰状细胞病婚前遗传咨询的障碍和促进因素。
J Pediatr Hematol Oncol. 2023 Aug 1;45(6):e716-e722. doi: 10.1097/MPH.0000000000002702. Epub 2023 Jul 5.
2
A qualitative study on stigma experienced by young adults living with sickle cell disease in Accra, Ghana.加纳阿克拉的一项关于患有镰状细胞病的年轻人所经历的耻辱感的定性研究。
Int Health. 2023 Nov 3;15(6):684-691. doi: 10.1093/inthealth/ihac087.
3
Do Words Matter? Stigmatizing Language and the Transmission of Bias in the Medical Record.用词重要吗？医疗记录中的污名化语言与偏见传递。
J Gen Intern Med. 2018 May;33(5):685-691. doi: 10.1007/s11606-017-4289-2. Epub 2018 Jan 26.
4
Among emergency physicians, use of the term "Sickler" is associated with negative attitudes toward people with sickle cell disease.在急诊医生中，使用“Sickler”这个词与对镰状细胞病患者的负面态度有关。
Am J Hematol. 2013 Jun;88(6):532-3. doi: 10.1002/ajh.23441. Epub 2013 May 13.
5
Health-related stigma: rethinking concepts and interventions.与健康相关的污名：重新思考概念与干预措施。
Psychol Health Med. 2006 Aug;11(3):277-87. doi: 10.1080/13548500600595053.
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