Department of Pediatrics, University of California San Diego, La Jolla, CA.
Department of Pediatrics, University of California San Diego, La Jolla, CA; Inflammatory Bowel Disease Center, Rady Children's Hospital, San Diego, CA.
J Pediatr. 2024 Dec;275:114244. doi: 10.1016/j.jpeds.2024.114244. Epub 2024 Aug 14.
To evaluate the status of health insurance knowledge and self-efficacy among adolescents and young adults with inflammatory bowel disease (AYA-IBD).
English-proficient AYA-IBD ≥15 years receiving care at an academic pediatric practice were invited to perform the Kaiser Family Foundation survey on health information knowledge and the Health Insurance Literacy Measure. Analyses of responses by demographic factors were performed using nonparametric analyses and agreement analyses were performed to compare survey responses.
Fifty AYA-IBD (60% 15-17 years old; 54% male; 76% White; 32% Hispanic) completed the surveys. Most AYA-IBD (58%) answered less than half the health insurance knowledge questions correctly. Reported ability and confidence in choosing and using health insurance was slight to moderate (median 2.8 on Likert scale of 1 [not at all confident] to 4 [very confident]). While health insurance knowledge scores did not vary by demographic factors, total health insurance self-efficacy increased with disease duration, and Hispanic participants reported reduced ability to select health insurance than non-Hispanic counterparts.
AYA-IBD demonstrated suboptimal health insurance knowledge and self-efficacy. Our findings identify an important opportunity to provide health insurance education to help prepare all AYA-IBD to manage the costs of medical care during the transition process to adulthood.
评估炎症性肠病青少年和年轻成人（AYA-IBD）的健康保险知识和自我效能状况。
邀请在学术儿科诊所接受治疗的精通英语的 AYA-IBD ≥15 岁患者参与凯泽家庭基金会健康信息知识调查和健康保险素养衡量标准调查。通过非参数分析对人口统计学因素的应答进行分析，并进行一致性分析以比较调查应答。
50 名 AYA-IBD（60%为 15-17 岁；54%为男性；76%为白人；32%为西班牙裔）完成了调查。大多数 AYA-IBD（58%）答对的健康保险知识问题不足一半。报告选择和使用健康保险的能力和信心为轻微到中度（Likert 量表的中位数为 2.8，1 表示完全没有信心，4 表示非常有信心）。尽管健康保险知识评分不受人口统计学因素的影响，但总体健康保险自我效能随疾病持续时间而增加，西班牙裔参与者报告的选择健康保险的能力低于非西班牙裔参与者。
AYA-IBD 的健康保险知识和自我效能不足。我们的研究结果表明，有必要提供健康保险教育，以帮助所有 AYA-IBD 为成年过渡期间的医疗费用管理做好准备。
