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“目前对我们来说不存在姑息治疗这个词”:一项混合方法研究,探讨不丹医疗保健专业人员对姑息治疗需求的看法。

'There is no such word as palliative care for us at the moment': A mixed-method study exploring the perceptions of healthcare professionals on the need for palliative care in Bhutan.

作者信息

Laabar Tara Devi, Saunders Christobel, Auret Kirsten, Johnson Claire E

机构信息

Department of Nursing, Faculty of Nursing and Public Health, Khesar Gyalpo University of Medical Sciences of Bhutan, Thimphu, Bhutan.

Department of Surgery, Melbourne Medical School, The University of Melbourne, Parkville, VIC, Australia.

出版信息

Palliat Care Soc Pract. 2024 Aug 15;18:26323524241272102. doi: 10.1177/26323524241272102. eCollection 2024.

Abstract

BACKGROUND

The need for palliative care is ever-increasing globally. However, it is least developed or not available in most low-and-middle-income-countries including Bhutan.

OBJECTIVE

This study was aimed at exploring the perspectives of Bhutanese healthcare professionals on the need for palliative care in the country.

DESIGN

This is a cross-sectional, mixed-method study.

SETTING/SUBJECTS: The study sites included all levels of healthcare in Bhutan and involved doctors, nurses, physiotherapists, pharmacists, health assistants and (traditional physicians). Data were collected through surveys, focus group discussions and in-depth interviews.

RESULTS

While the majority of the participants were directly involved in taking care of terminally ill and dying patients, only 14% had received some form of palliative care training for a duration ranging from 1 day to 6 weeks. Ninety-five percent of the participants reported that they faced challenges related to lack of palliative care knowledge and skills; limited resources including analgesics; shortage of doctors and nurses and lack of a palliative care team; issues with low illiteracy and financial challenges among patients; and policies and other systemic issues. The qualitative data generated four major themes: past adverse experiences; unique and complex needs for palliative care; challenges faced while caring for terminally ill and dying patients; and the urgent need for palliative care in Bhutan.

CONCLUSION

Bhutanese healthcare professionals had very limited exposure to palliative care. This study identified a crucial need for palliative care and informs the development of an appropriate palliative care model for Bhutan.

摘要

背景

全球对姑息治疗的需求在不断增加。然而,在包括不丹在内的大多数低收入和中等收入国家,姑息治疗发展最不完善或根本无法提供。

目的

本研究旨在探讨不丹医疗保健专业人员对该国姑息治疗需求的看法。

设计

这是一项横断面混合方法研究。

设置/对象:研究地点包括不丹各级医疗保健机构,涉及医生、护士、物理治疗师、药剂师、健康助理和传统医师。通过调查、焦点小组讨论和深入访谈收集数据。

结果

虽然大多数参与者直接参与照顾绝症患者和临终患者,但只有14%的人接受过为期1天至6周的某种形式的姑息治疗培训。95%的参与者报告说,他们面临与缺乏姑息治疗知识和技能、包括镇痛药在内的资源有限、医生和护士短缺以及缺乏姑息治疗团队、患者文盲率低和经济困难问题以及政策和其他系统性问题相关的挑战。定性数据产生了四个主要主题:过去的不良经历;姑息治疗的独特和复杂需求;照顾绝症患者和临终患者时面临的挑战;以及不丹对姑息治疗的迫切需求。

结论

不丹医疗保健专业人员对姑息治疗的接触非常有限。本研究确定了对姑息治疗的迫切需求,并为不丹制定适当的姑息治疗模式提供了信息。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1b70/11329896/ceb79e116611/10.1177_26323524241272102-fig1.jpg

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