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尼日利亚西南部一家三级保健机构住院患者的姑息治疗服务入院和需求评估模式。

Pattern of admissions and needs assessment for palliative care services among in-patients in a tertiary health facility in South-Western Nigeria.

机构信息

Department of Family Medicine, College of Medicine of the University of Lagos and Lagos University Teaching Hospita, Idi-Araba Lagos, Nigeria.

Department of Haematology, Lagos University Teaching Hospital Idi-Araba Lagos, Lagos, Nigeria.

出版信息

BMC Palliat Care. 2024 Aug 19;23(1):210. doi: 10.1186/s12904-024-01537-w.

Abstract

BACKGROUND

Palliative care evolution focuses on education and medication accessibility. As little as 12% of palliative care needs are met. Assessment of the domains of Palliative care and patients' and families' experience are essential in life-limiting conditions. The Lagos University Teaching Hospital (LUTH), have the National Cancer Centre without offering palliative care services.

AIM

The aim was to examine pattern of admissions and needs assessment for palliative services among patients admitted into LUTH wards.

MATERIALS AND METHOD

Responses were entered into a data sheet inputted into Epi info version 7.2. Descriptive characteristics of the participants were presented as frequencies and percentages for age, sex, pattern of disease, domains of Palliative care, Advance care Plan, Preparation for home care, death and Education about the illness and category of medical conditions (palliative and non-palliative conditions). Together for Short Lives (TfSL) tool was used to categorize respondents' conditions into Palliative and Non-palliative conditions. Chi-square test was used to determine association between independent variables (pattern of diagnoses, stage of disease, advanced care plan, preparation for home care/ death and education on illness) and dependent variables (category of medical condition). Chi-square test was also used to explore the association between specialty of the managing doctor (independent variable) and Advance care plan (dependent variable). The level of statistical significance was P-value < 0.05.

RESULTS

80.6% of the respondents had palliative care conditions, 83.7% had family members as their caregiver while 13.2% of the participants had no caregiver and 65.9% had no advance care plan. There was no preparation for home care or death in 72.1%, 70.5% had education about their illness, and 68.2% were in the advanced stage of their disease. Participants attending the surgery non-trauma unit (51.6%) were more likely to have advance care plans. Adults were more likely to have palliative care conditions (79.8%) compared to children (20.2%), and was statistically significant.

CONCLUSION

Majority of the participants need palliative care services but are unavailable and unmet and the most predominant condition was cancer. Majority had no advance care plan or preparation for home care or death despite having advanced stage of the disease. This survey emphasized the need for symptom management, communication and provision of support.

摘要

背景

姑息治疗的发展重点是教育和药物的可及性。只有 12%的姑息治疗需求得到满足。在生命末期疾病中,评估姑息治疗的领域以及患者和家属的体验至关重要。拉各斯大学教学医院(LUTH)设有国家癌症中心,但不提供姑息治疗服务。

目的

本研究旨在调查在 LUTH 病房住院的患者对姑息治疗服务的入院模式和需求评估。

材料与方法

将回答内容输入到电子数据采集表中,输入到 Epi info 版本 7.2。参与者的描述性特征以年龄、性别、疾病模式、姑息治疗领域、预先护理计划、家庭护理准备、死亡和疾病教育以及医疗条件(姑息和非姑息条件)的类别呈现为频率和百分比。Together for Short Lives(TfSL)工具用于将受访者的病情分为姑息和非姑息两类。卡方检验用于确定独立变量(诊断模式、疾病阶段、预先护理计划、家庭护理准备/死亡和疾病教育)与依赖变量(医疗条件类别)之间的关联。卡方检验也用于探索管理医生的专业(独立变量)和预先护理计划(依赖变量)之间的关联。统计显著性水平为 P 值<0.05。

结果

80.6%的受访者存在姑息治疗条件,83.7%的受访者的照顾者是家庭成员,而 13.2%的受访者没有照顾者,65.9%的受访者没有预先护理计划。72.1%的受访者没有家庭护理准备或死亡准备,70.5%的受访者接受过疾病教育,68.2%的受访者处于疾病晚期。参加非创伤外科手术单元的患者(51.6%)更有可能制定预先护理计划。成年人比儿童(20.2%)更有可能接受姑息治疗(79.8%),这具有统计学意义。

结论

大多数参与者需要姑息治疗服务,但无法获得和满足,最主要的疾病是癌症。尽管处于疾病晚期,但大多数患者没有预先护理计划或家庭护理准备或死亡准备。本次调查强调了症状管理、沟通和提供支持的必要性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/623a/11331655/3235335ee0b2/12904_2024_1537_Fig1_HTML.jpg

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