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Is health literacy of family carers associated with carer burden, quality of life, and time spent on informal care for older persons living with dementia?家庭护理者的健康素养是否与照顾者负担、生活质量以及为痴呆症老年患者提供非正式护理所花费的时间有关?
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2
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P R Health Sci J. 2019 Sep;38(3):163-169.
3
Psychological Sequelae in Family Caregivers of Critically III Intensive Care Unit Patients. A Systematic Review.危重症患者 ICU 家属的心理后遗症。系统评价。
Ann Am Thorac Soc. 2019 Jul;16(7):894-909. doi: 10.1513/AnnalsATS.201808-540SR.
4
Trauma ICU Prevalence Project: the diversity of surgical critical care.创伤重症监护病房患病率项目:外科重症监护的多样性。
Trauma Surg Acute Care Open. 2019 Feb 18;4(1):e000288. doi: 10.1136/tsaco-2018-000288. eCollection 2019.
5
Multifactorial Examination of Caregiver Burden in a National Sample of Family and Unpaid Caregivers.多因素分析家庭和无薪照顾者全国样本中的照顾者负担。
J Am Geriatr Soc. 2019 Feb;67(2):277-283. doi: 10.1111/jgs.15664. Epub 2018 Nov 19.
6
Caregiver health literacy predicting healthcare communication and system navigation difficulty.照顾者的健康素养对医疗沟通及系统操作难度的预测作用
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7
Epidemiology of Adult DSM-5 Major Depressive Disorder and Its Specifiers in the United States.美国成人 DSM-5 重性抑郁障碍及其特征的流行病学。
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8
Caregiver Burden in Parkinson Disease: A Critical Review of Recent Literature.帕金森病中的照料者负担:近期文献的批判性综述
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9
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10
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Psychol Addict Behav. 2017 Jun;31(4):497-505. doi: 10.1037/adb0000282. Epub 2017 May 11.

影响感知到的照料者负担的因素:从重症监护病房出院的创伤患者的照料者

Factors affecting perceived caregiver burden: caregivers of trauma patients discharged from the intensive care unit.

作者信息

Leonard Kiara, Turner Emma, Douglas Megan E, Patel Sarita, Bennett Monica M, Curcio Nicholas, Adams Maris, Pogue Jamie, McMinn Kenleigh, Petrey Laura, Reynolds Megan, Powers Mark B, Warren Ann Marie

机构信息

Division of Trauma, Critical Care, and Acute Care Surgery, Baylor University Medical Center, Dallas, Texas, USA.

Baylor Scott & White Research Institute, Dallas, Texas, USA.

出版信息

Proc (Bayl Univ Med Cent). 2024 Jul 16;37(5):717-724. doi: 10.1080/08998280.2024.2374126. eCollection 2024.

DOI:10.1080/08998280.2024.2374126
PMID:39165808
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11332626/
Abstract

BACKGROUND

Caregivers to intensive care unit survivors are vulnerable to caregiver burden, which has been demonstrated to have consequences to patients' and caregivers' mental and physical health. Potentially modifiable factors should be explored so that interventions may be developed.

METHODS

Ninety-one anticipated caregivers were prospectively assessed both at a southwestern trauma intensive care unit during their patient's admission and at home via remote interview 3 months after intensive care unit admission. Caregiver depression, posttraumatic stress symptoms, experiences, and perceived burden were assessed.

RESULTS

At follow up, there was a significant negative correlation between caregiver burden and understanding of their patient's condition ( < 0.001) and intensive care unit events ( = 0.008). Caregivers with lower understanding of their patient's injury/illness had significantly greater depressive symptoms ( = 0.04).

CONCLUSIONS

Education and knowledge of intensive care unit events regarding their patient may influence perceived burden among caregivers. Interventions to orient caregivers to intensive care unit events are suggested to reduce caregiver and healthcare system burden.

摘要

背景

重症监护病房幸存者的照料者易承受照料负担,事实证明,这种负担会对患者和照料者的身心健康产生影响。应探索潜在的可改变因素,以便制定干预措施。

方法

前瞻性评估了91名预期照料者,在西南部一家创伤重症监护病房,于其患者入院期间进行评估,并在重症监护病房入院3个月后通过远程访谈在其家中进行评估。评估了照料者的抑郁、创伤后应激症状、经历和感知负担。

结果

在随访时,照料负担与对患者病情的了解(<0.001)和重症监护病房事件(=0.008)之间存在显著负相关。对患者损伤/疾病了解较少的照料者有明显更严重的抑郁症状(=0.04)。

结论

关于其患者的重症监护病房事件的教育和知识可能会影响照料者的感知负担。建议采取干预措施,使照料者了解重症监护病房事件,以减轻照料者和医疗系统的负担。