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《合法化医疗辅助死亡对患者信任的影响:一项随机对照调查研究》。

The Impact of Legalizing Medical Aid in Dying on Patient Trust: A Randomized Controlled Survey Study.

机构信息

University of Pennsylvania School of Medicine, Philadelphia, Pennsylvania, USA.

Mount Sinai Hospital, New York, New York, USA.

出版信息

J Palliat Med. 2024 Nov;27(11):1459-1466. doi: 10.1089/jpm.2023.0706. Epub 2024 Aug 21.

Abstract

Some commentators and several professional medical associations have expressed concern that legalizing medical aid in dying ("MAID") will undermine patient trust in the medical profession, particularly among historically disadvantaged patient populations. While this concern remains influential, it has been subject to limited empirical scrutiny. This study aims to empirically assess whether MAID legalization undermines patient trust, with considerations of potential trust/demographic correlations in marginalized and minority patient populations. We developed an RCT survey study that assessed patients' trust in the medical professional using the Abbreviated Wake Forest Scale ("AWFS"). Two versions of the survey were used, each distributed at random to half of participants. One survey version included notification that MAID had been legalized in the jurisdiction where patients were receiving care and the other version omitted this information. We surveyed capacitated, English-speaking adult patients who were receiving care at a not-for-profit, 912-bed academic and research hospital in Washington, D.C. Of those invited to participate, 494 patients (63.2%) completed all AWFS questions, and 70.1% identified as Black or African American and 32.9% as having a physical or mental disability. Most of the participants not notified that MAID was legal in DC were not aware of this fact (92.5%). Patients who were notified that MAID was legal in DC were significantly more likely to report approval of MAID legalization ( = 0.0410), but showed no significant difference in AWFS score for trust in their physicians. The study did not substantiate concerns that legalizing medical aid in dying undermines patient trust in the medical profession.

摘要

一些评论家和一些专业医学协会表示担心,将医疗辅助自杀("MAID")合法化将破坏患者对医疗行业的信任,尤其是在历史上处于不利地位的患者群体中。尽管这种担忧仍然具有影响力,但它受到了有限的经验审查。本研究旨在通过考虑边缘化和少数群体患者群体中的潜在信任/人口统计学相关性,从经验上评估 MAID 合法化是否会破坏患者的信任。我们开发了一项 RCT 调查研究,使用缩短版威克森林信任量表("AWFS")评估患者对医疗专业人员的信任。使用了两种调查版本,每种版本随机分发给一半参与者。一个调查版本通知患者在其接受护理的司法管辖区 MAID 已经合法化,另一个版本则省略了此信息。我们调查了在华盛顿特区一家非营利性、拥有 912 张床位的学术和研究医院接受护理的有能力的、讲英语的成年患者。在受邀参加的患者中,有 494 名患者(63.2%)完成了所有 AWFS 问题,其中 70.1%为黑人或非裔美国人,32.9%为身体或精神残疾。大多数未被告知 MAID 在 DC 合法化的参与者对此并不知情(92.5%)。被告知 MAID 在 DC 合法化的患者更有可能报告赞成 MAID 合法化(=0.0410),但对其医生的信任 AWFS 评分没有显著差异。该研究没有证实将医疗辅助自杀合法化会破坏患者对医疗行业的信任的担忧。

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