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卫生领域领导者对医疗协助死亡及其合法化的观点和态度:一项定性研究

Health leaders' perspectives and attitudes on medical assistance in dying and its legalization: a qualitative study.

作者信息

Yee Amanda, Tong Eryn, Nissim Rinat, Zimmermann Camilla, Allin Sara, Gibson Jennifer L, Li Madeline, Rodin Gary, Shapiro Gilla K

机构信息

Leslie Dan Faculty of Pharmacy, University of Toronto, Toronto, ON, Canada.

Department of Supportive Care, Princess Margaret Cancer Centre, Toronto, ON, Canada.

出版信息

BMC Med Ethics. 2025 May 6;26(1):57. doi: 10.1186/s12910-025-01208-2.

Abstract

BACKGROUND

Medical Assistance in Dying (MAiD) has transformed health policy and practice on death and dying. However, there has been limited research on what shaped its emergence in Canada and the beliefs and views of health leaders who hold positions of influence in the healthcare system and can guide policy and practice. The objective of this study was to examine health leaders' perspectives on the factors that led to the emergence of MAiD and explore their attitudes about the legalization of MAiD.

METHODS

In this qualitative study, we conducted online semi-structured interviews with health leaders from April 2021 to January 2022. Purposive and snowball sampling techniques were used to recruit health leaders who have expertise and engagement with the delivery of MAiD or palliative and end-of-life care, and who hold positions of leadership relevant to MAiD in their respective organisations. Inductive thematic analysis was used to analyze the transcribed interviews.

RESULTS

Thirty-six health leaders were interviewed. Participants identified six factors that they believed to have led to the introduction of MAiD in Canada: public advocacy and influence; judicial system and notable MAiD legal cases; political ideology and landscape; policy diffusion; healthcare system emphasis on a patient-centred care approach; and changes in societal and cultural values. Participants expressed wide-ranging attitudes on the legalization of MAiD. Some described overall agreement with the introduction of MAiD, while still raising concerns regarding vulnerability. Others held neutral attitudes and indicated that their attitudes changed on a case-by-case basis. Participants described four factors that they considered to have had influence on their attitudes: personal illness experiences; professional experiences and identity; moral and religious beliefs; and, the valence of patient autonomy and quality of life.

CONCLUSIONS

This study highlights the wide-ranging and complex attitudes health leaders may hold towards MAiD and identifies the convergence of multiple factors that may have contributed to the legalization of MAiD in Canada. Understanding health leaders' attitudes and perspectives on the legalization of MAiD may inform stakeholders in other countries who are considering the legalization of assisted dying.

摘要

背景

医疗协助死亡(MAiD)已经改变了关于死亡和临终的卫生政策及实践。然而,关于其在加拿大出现的影响因素以及在医疗系统中占据有影响力职位并能指导政策和实践的卫生领导者的信念和观点的研究有限。本研究的目的是考察卫生领导者对导致MAiD出现的因素的看法,并探讨他们对MAiD合法化的态度。

方法

在这项定性研究中,我们于2021年4月至2022年1月对卫生领导者进行了在线半结构化访谈。采用目的抽样和滚雪球抽样技术招募在MAiD或姑息及临终关怀服务提供方面具有专业知识和参与度、且在各自组织中担任与MAiD相关领导职位的卫生领导者。采用归纳主题分析法对访谈转录文本进行分析。

结果

对36位卫生领导者进行了访谈。参与者确定了他们认为导致加拿大引入MAiD的六个因素:公众宣传与影响;司法系统及著名的MAiD法律案件;政治意识形态与格局;政策传播;医疗系统对以患者为中心的护理方法的重视;以及社会和文化价值观的变化。参与者对MAiD合法化表达了广泛的态度。一些人总体上赞同引入MAiD,但仍对弱势群体表示担忧。其他人持中立态度,并表示他们的态度因具体情况而异。参与者描述了他们认为对其态度有影响的四个因素:个人疾病经历;职业经历与身份;道德和宗教信仰;以及患者自主权和生活质量的重要性。

结论

本研究突出了卫生领导者对MAiD可能持有的广泛而复杂的态度,并确定了可能促成加拿大MAiD合法化的多种因素的趋同。了解卫生领导者对MAiD合法化的态度和观点可能会为其他正在考虑安乐死合法化的国家的利益相关者提供参考。

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Development of a Canadian Medical Assistance in Dying Curriculum for Healthcare Providers.为医疗服务提供者制定加拿大临终医疗协助课程。
J Med Educ Curric Dev. 2024 Aug 31;11:23821205241272376. doi: 10.1177/23821205241272376. eCollection 2024 Jan-Dec.

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