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比较拉丁裔、拉丁女性和/或拉丁男性与非拉丁裔、非拉丁女性和/或非拉丁男性帕金森病患者的体力活动和锻炼经历、价值观和信念:一项定性研究。

Comparing Physical Activity and Exercise Experiences, Values, and Beliefs of Latino, Latina, and/or Latine People and Non-Latino, Non-Latina, and/or Non-Latine People With Parkinson Disease: A Qualitative Study.

机构信息

Doctor of Physical Therapy Program, Department of Kinesiology, University of Connecticut, Storrs, Connecticut, USA.

Department of Kinesiology, University of Connecticut, Storrs, Connecticut, USA.

出版信息

Phys Ther. 2024 Oct 2;104(10). doi: 10.1093/ptj/pzae119.

Abstract

OBJECTIVE

The objective of this study was to examine and compare the beliefs, values, experiences, and barriers to and facilitators of exercise in Latino/a/e (Latino, Latina, and/or Latine) people and non-Latino/a/e (non-Latino, non-Latina, and/or non-Latine) people with Parkinson disease (PD).

METHODS

This study involved a qualitative research design with data collection via focus groups of Latino/a/e and non-Latino/a/e people with PD. A semistructured interview protocol was used, and a theoretical (social ecological model) thematic analysis was used for data analysis.

RESULTS

Twenty-five individuals (15 non-Latino/a/e and 10 Latino/a/e) participated across 5 focus groups. While there were several common themes among both groups, 7 themes related to exercise in the management of PD were unique to Latino/a/e participants: generalized versus specific knowledge of exercise components; family can have both facilitating and impeding roles; finances influence access to exercise and physical therapy; prior emotional experiences related to exercise and PD affect the future use of exercise; group exercise can have both facilitating and impeding roles; availability and access to a variety of modes and stratification of exercise classes for people with PD facilitate exercise; and cultural beliefs and expectations can impede the use of exercise at the population level.

CONCLUSION

Latino/a/e people with PD have overlapping and unique themes related to the use of exercise. Distinctive factors must be addressed in physical activity interventions and during physical therapists' care of people with PD to maximize the use of exercise and ultimately improve health equity in this overburdened and underserved population.

IMPACT

Physical therapists should provide information and education to their Latino/a/e patients with PD and family members on the frequency, intensity, type, and time of exercise and how to safely participate in physical activity in the home and community to best manage PD. Physical therapists and exercise professionals should work at the environmental level to increase access to affordable, culturally tailored, PD-specific exercise services and enhance community knowledge of PD.

摘要

目的

本研究旨在探讨和比较拉丁裔/人(拉丁裔、拉丁女性和/或拉丁人)和非拉丁裔/人(非拉丁裔、非拉丁女性和/或非拉丁人)帕金森病患者的信念、价值观、锻炼经验、锻炼障碍和促进因素。

方法

本研究采用定性研究设计,通过帕金森病患者的焦点小组收集数据。使用半结构化访谈方案,并使用理论(社会生态模型)主题分析进行数据分析。

结果

共有 25 名参与者(15 名非拉丁裔/人和 10 名拉丁裔/人)参加了 5 个焦点小组。尽管两组参与者有几个共同的主题,但与帕金森病患者锻炼管理相关的 7 个主题是拉丁裔/人参与者特有的:锻炼组成部分的普遍知识与具体知识;家庭可以发挥促进和阻碍作用;财务状况影响锻炼和物理治疗的机会;与锻炼和帕金森病相关的先前情感经历会影响未来锻炼的使用;团体锻炼可以发挥促进和阻碍作用;提供和获得各种模式和分层的帕金森病锻炼课程有助于锻炼;文化信仰和期望可能会阻碍人群层面锻炼的使用。

结论

拉丁裔/帕金森病患者在使用锻炼方面存在重叠和独特的主题。在身体活动干预和物理治疗师对帕金森病患者的护理中,必须解决独特的因素,以最大限度地利用锻炼,并最终改善这个负担过重和服务不足的人群的健康公平。

影响

物理治疗师应向拉丁裔/帕金森病患者及其家属提供有关锻炼的频率、强度、类型和时间的信息和教育,以及如何在家庭和社区中安全地进行身体活动,以最佳地管理帕金森病。物理治疗师和运动专业人员应在环境层面努力增加负担得起、具有文化特色、针对帕金森病的锻炼服务的机会,并增强社区对帕金森病的了解。

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