National Institute on Drug Abuse, National Institutes of Health, Bethesda, MD, USA.
National Institute on Drug Abuse, National Institutes of Health, Bethesda, MD, USA.
Dev Cogn Neurosci. 2024 Oct;69:101431. doi: 10.1016/j.dcn.2024.101431. Epub 2024 Aug 13.
The HEALthy Brain and Child Development (HBCD) Study, a multi-site prospective longitudinal cohort study, will examine human brain, cognitive, behavioral, social, and emotional development beginning prenatally and planned through early childhood. Study success depends on the engagement and inclusion of diverse populations of pregnant participants and their children across the United States, including those at high and low risk for prenatal substance use. The Communications, Engagement, and Dissemination (CED) Committee is responsible for the development and implementation of a strategy to promote awareness about the study, encourage participation, and engage HBCD families, community partners, and collaborators. Initial work involved developing versatile recruitment and awareness materials with a consistent and inclusive message that reduces stigma and negative bias towards marginalized populations, including people with substance use and other mental health conditions. These efforts were shaped by an integrated product development workflow and early engagement with HBCD partners to address challenges. Ongoing work includes the expansion of HBCD outreach through newsletters and social media platforms with an emphasis on protecting participant privacy. Future activities will focus on disseminating scientific information through generation of infographics and webinars that will inform participants, families, and the public of discoveries generated from HBCD Study data.
HEALthy 大脑与儿童发展(HBCD)研究是一项多地点前瞻性纵向队列研究,将从产前开始并计划贯穿整个儿童早期,研究人类大脑、认知、行为、社会和情感发展。研究的成功取决于美国不同人群的孕妇参与者及其子女的参与和纳入,包括那些产前物质使用高风险和低风险的人群。沟通、参与和传播(CED)委员会负责制定和实施一项战略,以提高对该研究的认识,鼓励参与,并使 HBCD 家庭、社区合作伙伴和合作者参与进来。最初的工作包括开发多功能的招募和宣传材料,这些材料有一个一致的、包容的信息,以减少对边缘化人群(包括有物质使用和其他心理健康问题的人群)的污名化和负面偏见。这些努力受到集成产品开发工作流程和与 HBCD 合作伙伴早期参与的影响,以解决挑战。正在进行的工作包括通过通讯和社交媒体平台扩大 HBCD 的外展范围,重点是保护参与者的隐私。未来的活动将侧重于通过生成信息图和网络研讨会来传播科学信息,这些信息将向 HBCD 研究数据的参与者、家庭和公众告知发现。