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帕克伍德VIP4SCI平台:一种针对脊髓损伤患者在整个护理连续过程中的虚拟电子健康自我管理解决方案。

Parkwood's VIP4SCI platform: A virtual e-health self-management solution for persons with spinal cord injury across the care continuum.

作者信息

Nageswaran Luxshmi, Giurleo Charlie, Seliman Merna, Askes Heather K, Abu-Jurji Zeina, Craven B Catherine, Kras-Dupuis Anna, Watson Julie, Wolfe Dalton L

机构信息

St Joseph's Health Care London, Parkwood Institute, London, ON, Canada.

Faculty of Health Sciences, Western University, London, ON, Canada.

出版信息

Digit Health. 2024 Aug 23;10:20552076241272618. doi: 10.1177/20552076241272618. eCollection 2024 Jan-Dec.

Abstract

OBJECTIVE

Parkwood VIP4SCI platform is a virtual e-health solution adapted from a version created for Spinal Cord Injury Ontario (SCIO) that focused on self-management skill development for persons with spinal cord injury (SCI) transitioning between stages of care, in partnership with caregivers and clinicians. This evaluation of the platform informs the usability and feasibility of a model to facilitate service care aims postrehabilitation.

DESIGN

Inpatients and outpatients admitted to the SCI Rehabilitation Program (n = 31), and a mix of interdisciplinary clinicians on the Rehabilitation Team (n = 20). Caregivers participated at the discretion of the patient. Inpatients were randomized into two groups (Platform or Standard Care (i.e., delayed access)). Outpatients were given access at enrollment. Pre-post assessments were completed using surveys, and platform analytics were collected. Weekly check-ins were introduced to increase engagement. Focus groups were held with a subset of participants near study completion.

RESULTS

VIP4SCI was viewed as usable and feasible. Platform satisfaction assessed on a -3 to +3 scale ranged from +0.9 to 2.5, demonstrating positive agreement. Self-efficacy related to self-management ranged from 5.4 to 7.6 out of 10. The educational resource hub was identified as the most beneficial feature. Lack of clinician uptake was a barrier to integration into day-to-day practice.

CONCLUSIONS

Platform usage was low among all groups despite the perceived need for facilitating care coordination with consistent and intentional self-management programming. Despite the lack of uptake, partly due to challenges associated with the pandemic, conclusions on platform features and barriers to implementation will help to inform future programming.

摘要

目的

帕克伍德VIP4SCI平台是一种虚拟电子健康解决方案,改编自为安大略省脊髓损伤协会(SCIO)创建的一个版本,该版本与护理人员和临床医生合作,专注于脊髓损伤(SCI)患者在护理阶段过渡期间自我管理技能的发展。对该平台的评估为促进康复后服务护理目标的模型的可用性和可行性提供了信息。

设计

脊髓损伤康复项目的住院患者和门诊患者(n = 31),以及康复团队中的多学科临床医生(n = 20)。护理人员根据患者的意愿参与。住院患者被随机分为两组(平台组或标准护理组(即延迟接入))。门诊患者在登记时即可使用。使用调查问卷完成前后评估,并收集平台分析数据。引入每周签到以提高参与度。在研究接近完成时,与一部分参与者进行了焦点小组讨论。

结果

VIP4SCI被认为是可用的且可行的。在-3至+3的量表上评估的平台满意度范围为+0.9至2.5,表明有积极的认可度。与自我管理相关的自我效能感在10分制中为5.4至7.6。教育资源中心被认为是最有益的功能。临床医生参与度不足是整合到日常实践中的一个障碍。

结论

尽管人们认为需要通过一致且有针对性的自我管理计划来促进护理协调,但所有组中的平台使用率都很低。尽管缺乏采用,部分原因是与疫情相关的挑战,但关于平台功能和实施障碍的结论将有助于为未来的计划提供信息。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d753/11342431/542b11ab957e/10.1177_20552076241272618-fig1.jpg

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