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本文引用的文献

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Prevalence and Risk Factors for Moral Distress in Pediatric Oncology Health Care Professionals.儿科肿瘤医疗保健专业人员道德困扰的患病率及风险因素
JCO Oncol Pract. 2023 Oct;19(10):917-924. doi: 10.1200/OP.23.00059. Epub 2023 Aug 25.
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Assessing and Supporting Adolescents' Capacity for Autonomous Decision-Making in Health-Care Settings: New Guidance From the World Health Organization.评估与支持青少年在医疗环境中的自主决策能力:世界卫生组织的新指南
J Adolesc Health. 2022 Jul;71(1):10-13. doi: 10.1016/j.jadohealth.2022.04.005.
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Adolescent decision making: A decade in review.青少年决策:十年回顾。
J Res Adolesc. 2021 Dec;31(4):1006-1022. doi: 10.1111/jora.12608.
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Identification of adolescents and young adults' preferences and priorities for future cancer treatment using a novel decision-making tool.利用一种新的决策工具确定青少年和年轻人对未来癌症治疗的偏好和优先事项。
Pediatr Blood Cancer. 2021 Jan;68(1):e28755. doi: 10.1002/pbc.28755. Epub 2020 Oct 5.
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Adolescent Brain Development and Medical Decision-making.青少年大脑发育与医疗决策。
Pediatrics. 2020 Aug;146(Suppl 1):S18-S24. doi: 10.1542/peds.2020-0818F.
6
How Should Adolescent Health Decision-Making Authority Be Shared?青少年健康决策权力该如何分享?
AMA J Ethics. 2020 May 1;22(5):E372-379. doi: 10.1001/amajethics.2020.372.
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What Is Adolescent and Young Adult Medicine?什么是青少年医学?
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End-of-Life Communication Needs for Adolescents and Young Adults with Cancer: Recommendations for Research and Practice.终末期癌症青少年和青年的沟通需求:研究和实践建议。
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ADOLESCENT PATIENTS AND THE CLINICAL DECISION ABOUT THEIR HEALTH.青少年患者及其健康相关的临床决策。
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Gaps in the Implementation of Shared Decision-making: Illustrative Cases.共享决策实施中的差距:实例说明。
Pediatrics. 2019 Mar;143(3). doi: 10.1542/peds.2018-3055. Epub 2019 Feb 5.

青少年肿瘤患者医疗决策中的伦理复杂性。

The Ethical Complexity of Medical Decision Making in the Adolescent Oncology Patient.

机构信息

MD Anderson Children's Cancer Hospital, Houston, TX 77030, USA.

出版信息

Curr Oncol. 2024 Jul 24;31(8):4158-4164. doi: 10.3390/curroncol31080310.

DOI:10.3390/curroncol31080310
PMID:39195293
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11353001/
Abstract

Adolescent Medical Decision Making (aMDM) is frequently discussed but presents a significant challenge in practice, especially in cases of adolescents with life threatening or life limiting illnesses. In this paper, we present a case that explores the importance of aMDM, the difficulties for providers when engaging adolescents in these discussions, and how certain skills may be incorporated into pediatric practice. Literature suggests that patients of this age group, while being legally without capacity, have meaningful insights into their care. However, unless physicians feel comfortable and competent engaging adolescents in a manner that honors their developmentally appropriate understanding of their illness, these insights can be lost.

摘要

青少年医疗决策(aMDM)经常被讨论,但在实践中却带来了重大挑战,尤其是在患有危及生命或限制生命疾病的青少年中。在本文中,我们提出了一个案例,探讨了 aMDM 的重要性、提供者在参与这些讨论时所面临的困难,以及如何将某些技能纳入儿科实践。文献表明,这个年龄段的患者虽然在法律上没有能力,但对自己的护理有深刻的见解。然而,除非医生感到舒适和有能力以尊重他们对疾病的发展适当理解的方式与青少年互动,否则这些见解可能会丢失。