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青少年肿瘤患者医疗决策中的伦理复杂性。

The Ethical Complexity of Medical Decision Making in the Adolescent Oncology Patient.

机构信息

MD Anderson Children's Cancer Hospital, Houston, TX 77030, USA.

出版信息

Curr Oncol. 2024 Jul 24;31(8):4158-4164. doi: 10.3390/curroncol31080310.

Abstract

Adolescent Medical Decision Making (aMDM) is frequently discussed but presents a significant challenge in practice, especially in cases of adolescents with life threatening or life limiting illnesses. In this paper, we present a case that explores the importance of aMDM, the difficulties for providers when engaging adolescents in these discussions, and how certain skills may be incorporated into pediatric practice. Literature suggests that patients of this age group, while being legally without capacity, have meaningful insights into their care. However, unless physicians feel comfortable and competent engaging adolescents in a manner that honors their developmentally appropriate understanding of their illness, these insights can be lost.

摘要

青少年医疗决策(aMDM)经常被讨论,但在实践中却带来了重大挑战,尤其是在患有危及生命或限制生命疾病的青少年中。在本文中,我们提出了一个案例,探讨了 aMDM 的重要性、提供者在参与这些讨论时所面临的困难,以及如何将某些技能纳入儿科实践。文献表明,这个年龄段的患者虽然在法律上没有能力,但对自己的护理有深刻的见解。然而,除非医生感到舒适和有能力以尊重他们对疾病的发展适当理解的方式与青少年互动,否则这些见解可能会丢失。

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