Svensson Katarina, Eliasson Ann-Christin, Sundelin Heléne, Holmqvist Kajsa Lidström
Division of Children's and Women's Health, Department of Biomedical and Clinical Sciences, Linkoping University, 58183 Linkoping, Sweden.
Crown Princess Victoria's Children Hospital, 58185 Linkoping, Sweden.
J Clin Med. 2024 Aug 18;13(16):4864. doi: 10.3390/jcm13164864.
: Recent guidelines on early intervention in children at high risk of cerebral palsy (CP) recommend parental involvement and family-centered home-based interventions with parents as primary trainers. Therapist coaching by home visitation is resource demanding, and telerehabilitation is a viable option for remote intervention and coaching. This study aims to describe parents' experiences of engaging in Baby-mCIMT coached remotely. Their infants are at high risk of unilateral cerebral palsy and the parents have been the primary trainers in regard to home-based intervention, optimizing the use of the affected hand. : A qualitative approach involving semi-structured interviews with eight parents was employed. Data were analyzed using qualitative content analysis. : The overarching theme "Parents in the driver's seat-learning through remote coaching to create conditions to enhance the child's motor skills" describes parents' experiences as primary training providers. The following three underlying categories with subcategories were identified: (1) Baby-mCIMT coached remotely in an everyday context-practical and technical prerequisites; (2) the child's response and the therapists' coaching supports active parental learning; (3) capability and sense of control-strengthening and demanding aspects. : Our findings revealed that Baby-mCIMT coached remotely empowered the parents as primary trainers, which provided them with opportunities for understanding and learning about their child and their development. The findings underscore the importance of responsive professional guidance and a strong therapist-parent relationship to succeed with the Baby-mCIMT program coached remotely and to manage the digital coaching format.
近期关于脑瘫（CP）高危儿童早期干预的指南建议家长参与，并以家庭为中心进行居家干预，由家长担任主要训练者。通过家访进行治疗师指导对资源要求较高，远程康复是一种可行的远程干预和指导选择。本研究旨在描述家长参与远程指导的婴儿改良约束诱导运动疗法（Baby-mCIMT）的体验。他们的婴儿有单侧脑瘫的高危风险，家长一直是居家干预的主要训练者，负责优化患手的使用。：采用了一种定性研究方法，对八位家长进行了半结构化访谈。使用定性内容分析法对数据进行了分析。：总体主题“家长掌控局面——通过远程指导学习创造条件以提高孩子的运动技能”描述了家长作为主要训练提供者的体验。确定了以下三个基本类别及子类别：（1）在日常环境中进行远程指导的Baby-mCIMT——实际和技术前提条件；（2）孩子的反应和治疗师的指导支持家长积极学习；（3）能力和控制感——强化和要求较高的方面。：我们的研究结果表明，远程指导的Baby-mCIMT使家长能够胜任主要训练者的角色，为他们提供了了解和学习孩子及其发育情况的机会。研究结果强调了及时的专业指导以及治疗师与家长之间牢固关系对于成功实施远程指导的Baby-mCIMT计划和应对数字指导形式的重要性。
