Department of Dermatology and Venereology, Faculty of Medicine, Dokuz Eylul University, İzmir, Turkey.
Photodermatol Photoimmunol Photomed. 2024 Sep;40(5):e12998. doi: 10.1111/phpp.12998.
Previous studies have noted the link between rosacea severity and quality of life, but there is limited understanding of how disease perception impacts these aspects. Additionally, sun exposure is identified as a common trigger for rosacea flare-ups, emphasizing the importance of sun protection practices in managing the condition. This cross-sectional study aims to fill the gap in the literature by investigating the relationship between clinical severity, disease perception, quality of life, and sun protection behaviors in rosacea patients.
Questionnaires assessing the quality of life, illness perception, sun protection behaviors, sun protection decisional balance, and its potential predictors were completed by 120 rosacea patients and 120 controls.
Patients exhibited a higher prevalence of sun protection behaviors than the control group (24.15 ± 5.76 vs. 17.63 ± 5.56, p < 0.001) and demonstrated greater determination in adhering to sun protection practices (13.43 ± 2.37 vs. 9.40 ± 3.09, p < 0.001). Hierarchical linear regression analyses showed that quality of life was related to clinical severity, illness perception (consequences, illness coherence, emotional representations), causal attribution (risk factors, immunity), and sun protection decisional balance variables (R = 0.45, F = 7.39, p < 0.001). Also, the perceived pros and cons of sun protection behaviors were predicted by illness perception (treatment control), causal attribution (risk factors, immunity, chance/accident), and quality of life variables (R = 0.24, F = 2.59, p = 0.004).
Providing more information to rosacea patients can improve their disease perception and quality of life, increasing adherence to sun protection behaviors.
先前的研究已经注意到酒渣鼻严重程度与生活质量之间的联系，但对于疾病认知如何影响这些方面，我们的了解有限。此外，阳光暴露被认为是酒渣鼻发作的常见诱因，这强调了在管理该病时采取防晒措施的重要性。本横断面研究旨在通过调查酒渣鼻患者的临床严重程度、疾病认知、生活质量和防晒行为之间的关系，填补这一文献空白。
通过问卷调查评估了 120 例酒渣鼻患者和 120 例对照者的生活质量、疾病认知、防晒行为、防晒决策平衡及其潜在预测因素。
与对照组相比，患者表现出更高的防晒行为发生率（24.15±5.76 比 17.63±5.56，p<0.001），并表现出更强的坚持防晒行为的决心（13.43±2.37 比 9.40±3.09，p<0.001）。分层线性回归分析显示，生活质量与临床严重程度、疾病认知（后果、疾病一致性、情绪表现）、因果归因（危险因素、免疫）和防晒决策平衡变量（R=0.45，F=7.39，p<0.001）有关。此外，防晒行为的感知利弊由疾病认知（治疗控制）、因果归因（危险因素、免疫、偶然/意外）和生活质量变量预测（R=0.24，F=2.59，p=0.004）。
为酒渣鼻患者提供更多信息可以改善他们的疾病认知和生活质量，从而提高他们对防晒行为的依从性。
