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从业者对智障儿童照顾者支持的看法。

Perspectives of practitioners on support for caregivers of children with intellectual disability.

机构信息

Quality in Nursing and Midwifery (NuMIQ) Research Focus Area, Faculty of Health Sciences, North-West University, Potchefstroom.

出版信息

Curationis. 2024 Aug 30;47(1):e1-e11. doi: 10.4102/curationis.v47i1.2559.

DOI:10.4102/curationis.v47i1.2559
PMID:39221716
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11369603/
Abstract

BACKGROUND

Children with profound intellectual disabilities are unable to do anything for themselves and require full-time care in healthcare facilities. While caring for children, secondary caregivers become overwhelmed. Coupled with little or no support, the overwhelming work affects their psychological, social and financial well-being. Mental healthcare practitioners have perspectives on conditions under which secondary caregivers work and how can they be supported. Little is known about such perspectives.

OBJECTIVES

This study aims to explore and describe the perspectives of mental healthcare practitioners regarding the conditions under which secondary caregivers of children with profound intellectual disabilities work and how can they be supported.

METHOD

A qualitative-exploratory-descriptive and contextual research design was adopted using a non-probability purposive sampling technique. This study was conducted in Gauteng province. Semi-structured individual interviews were performed to collect data. Content data analysis and ATLAS.ti were used to analyse the data.

RESULTS

Knowledge and skills development, stress reduction, resources and motivation were themes that emerged.

CONCLUSION

This study explored and described the perspectives of mental healthcare practitioners regarding the conditions under which secondary caregivers of children with profound intellectual disabilities work and how can they be supported. If implemented, perspectives can improve the holistic well-being of secondary caregivers.Contribution: This study broadened an understanding of how secondary caregivers can be supported. Future researchers can use study results to develop programmes, intervention strategies and frameworks to support secondary caregivers.

摘要

背景

患有严重智力障碍的儿童无法自理，需要在医疗机构中接受全职护理。在照顾儿童的过程中，二级护理人员会不堪重负。再加上几乎得不到支持，繁重的工作会影响他们的心理、社会和经济福祉。心理健康护理人员了解二级护理人员的工作条件，以及如何为他们提供支持。然而，人们对这些观点知之甚少。

目的

本研究旨在探讨和描述心理健康护理人员对患有严重智力障碍儿童的二级护理人员的工作条件的看法，以及如何为他们提供支持。

方法

采用定性探索性描述性和情境研究设计，使用非概率目的抽样技术。本研究在豪登省进行。采用半结构化个体访谈收集数据。使用内容数据分析和 ATLAS.ti 对数据进行分析。

结果

知识和技能发展、减轻压力、资源和动机是出现的主题。

结论

本研究探讨和描述了心理健康护理人员对患有严重智力障碍儿童的二级护理人员的工作条件的看法，以及如何为他们提供支持。如果实施，这些观点可以改善二级护理人员的整体福祉。贡献：本研究拓宽了对如何支持二级护理人员的理解。未来的研究人员可以使用研究结果来制定方案、干预策略和框架，以支持二级护理人员。