照顾者在丧亲过程中支持智力残疾人士的体验：一种阐释现象学分析。
The experience of carers in supporting people with intellectual disabilities through the process of bereavement: an interpretative phenomenological analysis.
机构信息
Southwark Psychology Service for Adults with Learning Disabilities, South London and Maudsley NHS Trust, London, UK.
出版信息
J Appl Res Intellect Disabil. 2013 May;26(3):186-94. doi: 10.1111/jar.12025.
BACKGROUND
This study explored the personal experiences of family carers and residential care staff in supporting adults with intellectual disabilities through the process of bereavement.
METHOD
A semi-structured interview was used to interview 11 carers on their experience of supporting adults with intellectual disabilities through the process of bereavement. The transcripts were analysed using interpretative phenomenological analysis (IPA).
RESULTS
A total of five superordinate themes were identified: (i) Factors making the experience difficult for carers, (ii) Factors that helped carers, (iii) Carers' perspectives on the responses of people with intellectual disabilities, (iv) Approaches to supporting people with intellectual disabilities and (v) Carers' perspectives on support.
CONCLUSIONS
Supporting people with intellectual disabilities through bereavement is an emotionally demanding task for carers. The support needs of carers need to be acknowledged and addressed in order to ensure that adequate support is available to people with intellectual disabilities following bereavement.
背景
本研究通过丧亲过程，探索了家庭照顾者和居住护理人员在支持成年智障人士方面的个人经验。
方法
采用半结构式访谈，对 11 名照顾者进行了访谈，了解他们在丧亲过程中支持成年智障人士的经验。使用解释现象学分析（IPA）对转录本进行分析。
结果
确定了五个上位主题：（i）使照顾者体验困难的因素，（ii）帮助照顾者的因素，（iii）照顾者对智障人士反应的看法，（iv）支持智障人士的方法，以及（v）照顾者对支持的看法。
结论
对照顾者来说，通过丧亲过程支持智障人士是一项情感要求很高的任务。需要承认和解决照顾者的支持需求，以确保在丧亲后为智障人士提供足够的支持。
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