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肿瘤学领域中医疗保健提供者、患者、科学界和媒体之间的沟通:意大利肿瘤医学协会(AIOM)的建议。

Communication in oncology between healthcare providers, patients, the scientific community, and the media: recommendations from the Italian Association of Medical Oncology (AIOM).

机构信息

Medical Oncology, Azienda Ospedaliera Universitaria (AOU) Delle Marche, Università Politecnica Delle Marche, Ancona, Italy.

Oncology Unit 1, Department of Oncology, Istituto Oncologico Veneto IOV-IRCCS, Padova, Italy.

出版信息

Support Care Cancer. 2024 Aug 26;32(9):613. doi: 10.1007/s00520-024-08786-8.

Abstract

AIM

To identify barriers between health and communication in oncology in order to promote the best possible practice. The areas of communication to be focused on are communication directly with the patient, communication within the scientific community, and communication with the media.

MATERIAL AND METHODS

A working group including eminent experts from the national mass media, healthcare system, and patients' advocacy has been established on behalf of the Italian Association of Medical Oncology (AIOM), with the aim of developing suitable recommendations for the best communication in oncology. A literature search has been conducted selecting primary studies related to the best practices applied to communication in oncology. Subsequent to having identified the most representative statements, through a consensus conference using the RAND/University of California Los Angeles modified Delphi method, the panel evaluated the relevance of each statement to support useful strategies to develop effective communication between oncologist physicians and patients, communication within the scientific community, and communication with media outlets, including social media.

RESULTS

A total of 292 statements have been extracted from 100 articles. Following an evaluation of relevance, it was found that among the 142 statements achieving the highest scores, 30 of these have been considered of particular interest by the panel.

CONCLUSIONS

This consensus and the arising document represent an attempt to strengthen the strategic alliance between key figures in communication, identifying high-impact recommendations for the management of communication in oncology with respect to patients, the wider scientific community, and the media.

摘要

目的

确定肿瘤学中健康与沟通之间的障碍,以促进最佳实践。关注的沟通领域包括与患者的直接沟通、科学界内部的沟通以及与媒体的沟通。

材料与方法

代表意大利肿瘤医学协会(AIOM)成立了一个工作组,成员包括来自大众媒体、医疗保健系统和患者权益倡导领域的杰出专家,旨在为肿瘤学中的最佳沟通制定合适的建议。通过选择与肿瘤学中最佳沟通实践相关的原始研究,进行了文献检索。在确定了最具代表性的陈述后,通过使用 RAND/加州大学洛杉矶分校改良德尔菲法的共识会议,专家组评估了每个陈述对支持制定有效策略的相关性,以促进肿瘤学家与患者、科学界内部以及与媒体(包括社交媒体)之间的有效沟通。

结果

从 100 篇文章中提取了 292 条陈述。在评估相关性后,发现在获得最高分的 142 条陈述中,有 30 条被专家组认为特别有意义。

结论

这项共识和由此产生的文件代表了加强沟通关键人物之间战略联盟的尝试,确定了针对患者、更广泛的科学界和媒体的肿瘤学沟通管理方面的高影响力建议。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b646/11369048/70f278af5de9/520_2024_8786_Fig1_HTML.jpg

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